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Blog - 05/12/2023

“I think my biggest piece of advice is talking about CF, but also realising that you can do more than you might think” – Isobel, 23.

We spoke with Isobel about her CF journey, running the Cardiff Half Marathon, and the importance of positive stories.

Feature - 30/11/2023

Using apps in CF research

Apps on our phones are a big part of day-to-day life, so using them for research and health monitoring in CF seems like a logical step. Here, we talk to researchers about how they’re working with people with CF to use apps to help them learn more about CF and improve their health.

Blog - 30/11/2023

What happens next with the NICE modulator appraisal?

NICE are currently evaluating the cost-effectiveness of Kaftrio, Orkambi and Symkevi. With the committee due to meet again on 14 December following public consultation, we discuss the next steps