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Latest news and blogs

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Blog - 20/01/2022

“It's such a fabulous opportunity for the CF community to carve out research priorities and have a say in that process”: Nicole & Martyn’s story

On the day we launch QuestionCF, an exciting project to review your cystic fibrosis (CF) research priorities for the future, Nicole and Martyn Edwards - who have double the reason to be interested in the project - share their story and what’s on their CF research wishlist.

News - 20/01/2022

What do you think should be the priorities for future CF research?

The cystic fibrosis (CF) community play a vital role in shaping our research, and it’s really important to us that we’re prioritising the topics that matter most to you. That’s why we’re asking for your help. We’re asking the whole community – people with CF, families, carers, professionals and researchers – to share your views and tell us what your CF research priorities are right now, in 2022.

News - 18/01/2022

We’re developing our new online forum and need your help

Before we launch our new online forum next month, we want to hear from you to make sure that it is built and driven by the CF community’s needs. Can you fill out our quick survey?