Cystic Fibrosis Trust Homepage

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We offer high-quality, trusted information and support to help everyone affected by CF live life to the full.

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New diagnosis

If your baby has just been diagnosed with CF, you might not know where to start. We've pulled together some information to help make things easier.

Take a look at our resources for new parents

About cystic fibrosis

Cystic fibrosis (CF) is a genetic condition affecting over 11,000 people in the UK. You are born with CF and cannot catch it later in life, but one in 25 of us carries the faulty gene that causes it, usually without knowing.

Learn more about CF

School resources

By working together with the school and your CF team, you can make sure your child’s education is not limited by CF.

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Latest news and blogs

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Blog - 04/09/2026

Study on impact of air pollution on lung function in people with CF

Recent research shows that people with cystic fibrosis (CF) living in areas of London with high air pollution, may have poorer lung health than those who live in areas with cleaner air. In this article, we explain more about the research and what it means for people with CF. This study addresses an important research gap and its results strengthen the conclusions of Cystic Fibrosis Trust’s Air Quality and Cystic Fibrosis report Air Quality and Cystic Fibrosis: A Pragmatic Review.

Blog - 03/09/2026

How our Rest and Relax grant helped Sumaiyah reset after a difficult year

Sumaiyah, who has cystic fibrosis (CF), was recently given one of our Rest and Relax grants following a difficult period with her health. She used the grant to visit Chester Zoo and stay in a lakeside lodge with her mum, Tasleem. We spoke to Sumaiyah and Tasleem about their CF story and how the grant gave Sumaiyah “something positive to look forward to after a tough time.”

Blog - 01/09/2026

“This challenge is for those people who may be feeling the same despair and hopelessness that I felt”

In September, our Trustee Michelle Shore, who has cystic fibrosis (CF), will be taking on an epic challenge, walking the English coastline from Filey to Robin Hoods Bay to raise vital funds for Cystic Fibrosis Trust. We caught up with Michelle to hear more about her CF story and the inspiration behind her fundraising challenge.

Current issues

Stay up to date with the latest issues affecting people with CF, including hot weather and Creon shortages, and find practical advice, support, and updates.

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Events

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Event Date: 15/12/2026

CF never lets you have a day off

Cystic fibrosis is a life-limiting, genetic condition without a cure. It dominates thousands of lives every day. You never get a day off when you have CF.

Raise awareness of CF

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