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CF Week

Join us from 14–20 June where we will share stories of day-to-day life with CF and look ahead to what the future brings, on the theme of ‘we won’t stop’. Don't forget Wear Yellow Day on Friday 18 June!

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Latest news and blogs

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Blog - 16/06/2021

Understanding and responding to the needs of diverse ethnic communities

This year’s CF Week is all about how, as a community, we won’t stop: whether that’s researching for ground-breaking discoveries, supporting the physical and mental challenges of cystic fibrosis (CF), or responding to the varying needs of the diverse CF population. Here, Jacqueline Ali, Head of Information, Support and Programmes at the Trust, talks about work the Trust is doing to ensure our information and support services reflect the diversity of the CF community.

Blog - 14/06/2021

We won't stop until everyone has access to the best treatments

This year’s CF Week is all about how, as a community, we won’t stop: whether that’s researching for ground-breaking discoveries, supporting the physical and mental challenges of cystic fibrosis (CF), or ensuring everyone with CF has access to the best possible treatments. Here, Nubi shares her journey of starting on Kaftrio, exploring her personal experiences and views of the new triple combination therapy that was licensed last year.

Blog - 14/06/2021

We won't stop caring for your wellbeing

This year’s CF Week is all about how, as a community, we won’t stop: whether that’s researching for ground-breaking discoveries, supporting the physical and mental challenges of cystic fibrosis (CF), or helping people with CF live a fulfilled life. Here, 29-year-old Rachel, a Psychological Wellbeing Practitioner and Teaching Fellow in Psychology at Ulster University, Northern Ireland, shares her experiences of growing up with CF, the importance of wellbeing and her tips for finding balance in life.