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Great Strides My Way

This June, take on Great Strides in your own way – on a treadmill, doing laps around your local streets or by mapping out a route in your local area!

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Feature - 19/04/2021

#TeamLucy tackle a virtual half marathon as a team

Although we still can’t meet in person for fundraising events, Sarah and her friends found a virtual way to run together as a team. Over the Easter weekend, over 70 runners across the UK (and internationally!) took on a half marathon to raise money for Lucy, Sarah’s 17-month-old daughter who has cystic fibrosis (CF). Here, Sarah reflects on organising an event during lockdown, her highs and lows, and her tips for training during a pandemic.

Feature - 15/04/2021

Join us for a tour through the Trust’s cutting-edge research

This year, our annual UK Cystic Fibrosis Conference (UKCFC) will be held entirely online for the first time, on Wednesday 12 May 2021. The conference is an informal opportunity for the CF research community to share their results, generate new ideas and spark interest in new collaborations. Read on to find out about some of the exciting research being presented at UKCFC this year.

Blog - 14/04/2021

Tim's story: 50 years of living with cystic fibrosis

When Tim was diagnosed with cystic fibrosis (CF) in 1971, his parents were told he would only live to his teenage years. Instead, he celebrated his 50th birthday earlier this year. Tim, who has the double Delta F508 mutation, works full time as a Communications Manager in South London, where he lives with his wife, Katie, and 13-year-old son, Felix. In this blog, Tim takes a look back on how CF treatments have evolved over the last 50 years and reflects on key moments that changed his life, including cross-infection risks and Kaftrio.