Cystic Fibrosis Trust Homepage

Unite with us for a life without limits

We fund vital research, improve care, speak out and race towards effective treatments for all. But we can't do it without you.

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Make a regular donation

Your donation will support us to continue our vital work as we race towards effective treatment for all.

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Get support with CF

We offer high-quality, trusted information and support to help everyone affected by CF live life to the full.

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Get involved

Donate your time, money or voice and make a real difference today!

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New diagnosis

If your baby has just been diagnosed with CF, you might not know where to start. We've pulled together some information to help make things easier.

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About cystic fibrosis

Cystic fibrosis (CF) is a genetic condition affecting over 11,000 people in the UK. You are born with CF and cannot catch it later in life, but one in 25 of us carries the faulty gene that causes it, usually without knowing.

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Help more people come home from hospital

With your donation, we can fund research into groundbreaking treatments that will save lives.

Latest news and blogs

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Behind the scenes in the making of Cracking the CF Code

Cracking the CF Code is our new resource for children with CF. It was completely written by young people in our Youth Advisory Group (YAG), who used their knowledge and experiences to explain tricky medical words and concepts to 6–9-year olds. We go behind the scenes with Ellie and Bahar, who work in the Trust’s youth team, to find out how the idea was brought to life.

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New innovations in CF lung health

Over the next five years, our Translational Innovation Hub Network for lung health and infection in CF will address challenges around finding new lung infection treatment options, detecting and treating flare-ups, and developing new ways to diagnose infections.

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Help us understand the reality of access to PERT in 2025

Share your experiences of accessing Pancreatic Enzyme Replacement Therapy (PERT) by taking part in our survey.

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Current issues

Find out about the Alyftrek appraisal, Creon shortages, I-neb nebulisers, the cost of living crisis, and plans to reform the current benefits system, what we're doing to help resolve these issues, and how we can support you.

Events

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All year

Bungee Jump

Experience the thrill of a lifetime with our exhilarating bungee jumps.

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CF never lets you have a day off

Cystic fibrosis is a life-limiting, genetic condition without a cure. It dominates thousands of lives every day. You never get a day off when you have CF. 

More from Cystic Fibrosis Trust

Helpline

Contact our friendly Helpline team who can provide you with information about any aspect of living with cystic fibrosis.

Contact us

Get in touch with us if you have any questions or are in need of guidance.

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