Cystic Fibrosis Trust Homepage

Uniting for a life unlimited

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Physically Well 
Together, we can live without the physical challenges of cystic fibrosis. 

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Mentally Well 
Together, we can manage the mental pressures of cystic fibrosis. 

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Fulfilment
Together, we can lead the life we want as part of a connected community.

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The cost of CF

87% of people with cystic fibrosis are worried about the cost of living, our new report finds. 

Latest news and blogs

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Cost of CF: Chantelle’s story

As the cost of living continues to rise, people with life-limiting conditions like cystic fibrosis (CF) are among the hardest hit. Results from our recent Cost of CF report painted a shocking picture, with one in three CF families revealing they had run out of food before they could afford to buy more, and one in three people with CF missing hospital appointments due to the cost. We spoke to Chantelle about the challenges she’s facing.

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When I grow up: YAG's new project spotlighting different careers

What did you want to be when you were younger? Doctor? Footballer? Vet? Firefighter? Dancer? The hopes, dreams and aspirations of the CF community are as big and far-reaching as everyone else’s. That’s why our Youth Advisory Group (YAG) have launched a new careers project, When I grow up..., to show young people with CF the possibilities that are out there when it comes to planning a future career.

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A tribute to Mary Heeley

Everyone at the Trust was very sorry to hear news of the death of Mary Heeley, who passed away last month. Mary and her husband, Dr Anthony Heeley, were the pioneers behind the world’s first regional screening programme for cystic fibrosis, established in 1980 in East Anglia. This innovative model was later adopted across this UK and has made a huge difference to people with CF and their families, changing the way CF is understood and cared for forever.

Events

Go Swim

Go Swim Scotland

An open water swimming experience you will never forget.

Step Forwards walking challenge

Walk your way for a life without limits

Join our walking challenge, wherever you are, on a date and time that suits you!

More from Cystic Fibrosis Trust

Helpline

Contact our friendly team via our helpline who can provide you with information about any aspect of living with cystic fibrosis.

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Get in touch with us if you have any questions or are in need of guidance

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