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The cost of CF

87% of people with cystic fibrosis are worried about the cost of living, our new report finds.

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Blog - 29/07/2022

Cost of CF: Chantelle’s story

As the cost of living continues to rise, people with life-limiting conditions like cystic fibrosis (CF) are among the hardest hit. Results from our recent Cost of CF report painted a shocking picture, with one in three CF families revealing they had run out of food before they could afford to buy more, and one in three people with CF missing hospital appointments due to the cost. We spoke to Chantelle about the challenges she’s facing.

Feature - 27/07/2022

When I grow up: YAG's new project spotlighting different careers

What did you want to be when you were younger? Doctor? Footballer? Vet? Firefighter? Dancer? The hopes, dreams and aspirations of the CF community are as big and far-reaching as everyone else’s. That’s why our Youth Advisory Group (YAG) have launched a new careers project, When I grow up..., to show young people with CF the possibilities that are out there when it comes to planning a future career.

Feature - 20/07/2022

A tribute to Mary Heeley

Everyone at the Trust was very sorry to hear news of the death of Mary Heeley, who passed away last month. Mary and her husband, Dr Anthony Heeley, were the pioneers behind the world’s first regional screening programme for cystic fibrosis, established in 1980 in East Anglia. This innovative model was later adopted across this UK and has made a huge difference to people with CF and their families, changing the way CF is understood and cared for forever.