Resources for CF professionals

We provide a number of different resources, programmes and awards to help support CF professionals to provide the best care possible to people with cystic fibrosis (CF) and their families.

  • Consensus documents 

    To ensure that they receive the best possible treatment, we have developed Standards of Care in the form of consensus documents covering aspects of CF care such as nursing, physiotherapy, antibiotics and CF-related diabetes.

  • Lay summaries

    Read our simple summaries and full service specifications of our lay introductions to cystic fibrosis services.

  • SmartCareCF

    We're exploring how technology could simplify communication, streamline care, and give people with cystic fibrosis greater control over their health. Find out more about SmartCareCF and our paediatric study for the project, CLIMB-CF.

  • Supporting clinicians

    Find out how we support clinicians through our Clinical Training Fellowship and Physiotherapy Fellowship programmes.

  • The UK CF Medical Association

    The UK Cystic Fibrosis Medical Association (UKCFMA) represents doctors in the UK who deliver clinical care to people with cystic fibrosis. They work to ensure optimum care and improved outcomes for people with the condition. Find out more about the UKCFMA and the work they do.

  • Quality Improvement

    Our Quality Improvement team work with CF centres to better understand patient experiences and staffing levels, facilitating improvements in the care provided. The UK CF Registry, an anonymised database of patient information assists with monitoring this care.

Reading material

Take a look at our publications about living with cystic fibrosis.

UK CF Registry

The Registry is an anonymised database of people with CF in the UK - a powerful tool for monitoring and auditing the care that people receive.

Professionals newsletter

Are you a professional working in the field of CF? Sign up for our quarterly newsletter, bringing you the latest CF news tailored for the professional community.

Your donation will make a difference:

Select amount
Select amount