Support our campaigns

We tackle issues that matter – access to medicines, fairer transplant processes and equal care for all – and the more people who join in, the louder our voice will be. Together, we have the power to create a brighter future where people with cystic fibrosis (CF) can live a life unlimited, so let’s speak up and make it happen, sooner.
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Cost of CF
84% of people with CF are worried about the cost of living, a report by Cystic Fibrosis Trust has found. Read our full report and find out what we're demanding the Government does to address this crisis.
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Transplants
Read our report and find out more about our campaign for a fairer donor lung allocation system across the UK so that more people with CF can receive successful transplants and a better quality of care.
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Improving mental health and wellbeing
We're uniting so everyone with CF can manage the emotional and psychological pressures of cystic fibrosis. Find out more about our campaign to improve our community’s mental health.
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Life-saving drugs
We are working to create fair access to precision medicines for everyone with cystic fibrosis in the UK. Find out more about our campaign.
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Prescription charges
CF is one of the few life-threatening, chronic conditions where people are still required to pay for prescriptions in England, incurring a lifelong financial burden. Join our campaign for free prescriptions for people with CF.
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Our campaign successes
Alongside access to medicines, our campaigns have called for issues that really matter to people with CF such as: better facilities for people with CF at King’s College Hospital; a national lung transplant allocation system; and access to cost-effective travel insurance and free oxygen on flights.
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Coalitions we're part of
- Charity Medicines Access Coalition
- Healthcare in Schools Alliance
- Continued use of Face Mask (with the NHS Confederation)
- BLF Taskforce for lung health
- Specialised Healthcare Alliance
- Association of the British Pharmaceutical Industry (ABPI) Patient Organisation Forum
- NHS Blood and Transplant (NHSBT) Cardiothoracic Patient Group
- #SafeAtWork Coalition
- Prescription Charges Coalition
- Disability Benefits Consortium
- Association of Medical Research Charities Policy and Public Affairs Working Group
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Support from parliamentarians
We'd like to say a huge thank you to all parliamentarians who've got involved with our campaigns! Take a look at the list of Parliamentarians across the UK who have been supportive of our campaigns.
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Get in touch
If you have any questions or want to help out, contact [email protected] – we'd love to hear from you!
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General election 2024
A general election will take place on July 4. Unite with us to make sure cystic fibrosis is high on the agenda for your local candidate.
Latest news
The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.
Our Helpline
Our Helpline is available to anyone looking for information or support with any aspect of cystic fibrosis, a listening ear, or just to talk things through.
Financial help
We provide a range of grants for people with cystic fibrosis and their families, support for those applying for benefits and information about prescription charges.