Financial support and welfare advice during coronavirus
We know this is a worrying time for the cystic fibrosis (CF) community, and many have questions and concerns about the spread of the coronavirus (COVID-19) and how it may affect them. We have tried to provide some answers to the frequent questions we’ve received to our helpline below. It’s important that people also seek advice from their CF team to support their decisions.
Last updated: 23 July 2021
From 1 April 2021, shielding stopped in England and Wales. Shielding stopped in Northern Ireland from 11 April and Scotland from 26 April. The shielded patients list is being retained in case there is a need for further shielding advice in future.
Restrictions remain in place across the UK, and vary by nation. This is an evolving situation, and the most up to date information can be accessed via the links below.
People who are clinically extremely vulnerable across the UK are still asked to take extra precautions to protect themselves. Following the end of shielding, people who are clinically extremely vulnerable are still advised to work from home where possible, but can return to work providing their workplaces is COVID-secure.
The situation remains that most children with cystic fibrosis (CF) are no longer classed as clinically extremely vulnerable, though a small number remain on the shielding list on medical advice.
Schools across the UK have begun reopening. All primary schools and some secondary schools have now resumed face to face learning; other secondary schools are reopening on a phased basis. View the latest education guidance across the UK.
The Government's furlough scheme has been extended until the end of September 2021. The Government food parcel scheme has now ceased; however, some of the support measures in place for those who have been shielding (such as the NHS Volunteer Responders scheme in England) continue to deliver food and medication where needed.
Read the latest general guidance and shielding guidance across the UK:
- England – general guidance and shielding guidance
- Wales – general guidance and shielding guidance
- Scotland – general guidance and shielding guidance
- Northern Ireland – general guidance and shielding guidance
If you or your children are struggling to cope with worries about the virus, visit our page on mental and physical health during the COVID-19 pandemic.
ACAS has provided some useful guidance for employees and employers, which is quite general but is also very clear and straightforward.
As restrictions are lifting, some people with CF have shared their concerns about returning to their workplace. It may be useful to remember that cystic fibrosis can be classed as a disability, which means people with CF have the right to request reasonable adjustments at work.
You can read more about this, and find information to help explain cystic fibrosis to employers in our employment factsheet. You may also find the latest guidance from the CFMA helpful, as well as government guidance for those who are clinically extremely vulnerable across the UK.
The ‘Safe At Work’ campaign has also produced a letter to employers which you may find useful if you are concerned about the risk of COVID-19 as and when you return to your workplace.
We will continue to keep this information updated. If you are worried about the financial implications of any changes to your employment status,
If you are worried about the financial implications of any changes to your employment status, please speak to your CF specialist social worker or contact our Helpline, who can provide information on benefits and our welfare grant programme. The helpline can also arrange for you to have personalised advice from our Welfare and Rights Advisor or our Welfare Officer, who can support you to understand your rights and the options available. Further information about this can be found below.
For advice about Carers Rights at work, visit carers UK.
An important part of understanding your employment rights is knowing whether you are employed or self-employed. You can find useful definitions on the ACAS website.
With shielding being paused, there have been some changes to the benefits rules and procedures. We have also added some important dates if you’re claiming under the income support scheme for Self-Employment.
It is very difficult to give general benefits advice, as your entitlement depends on many things, like who you live with, if you have a partner in employment, your savings situation, and your National Insurance record.
Another major factor is whether you have a good relationship with your employer, and if you are entitled to any contractual sick pay. Your employer can also get support.
Sometimes there are difficult decisions to make, and while we don’t always have the answers, we can support you and make sure you are well informed to make your own decisions weighing up practical arrangements, finances and risks to health.
If you are currently receiving any legacy benefits (see below), we would stress the importance of seeking specialist advice rather than following what has been reported in the press about claiming Universal Credit, as this could mean you are at risk of losing something else you receive.
Legacy benefits are:
- Child tax credit
- Housing benefit
- Income-related employment and support allowance
- Income-based jobseeker's allowance
- Income support
- Working tax credit
Here are answers to some more specific questions that you might have about financial support and benefits:
- What can I claim if I'm self-employed?
- What can I claim if I'm not going to work?
- Should I go to my jobcentre appointment?
- How will the suspension of face-to-face health assessment affect me?
- How will the suspension of benefits reviews and reassessments affect me?
- Will I be sanctioned for not looking for work?
- What should I do if I can't wait five weeks for Universal Credit?
- How is the Trust supporting those in financial need?
The Government set up a scheme to support you if you're self-employed or a member of a partnership and have lost income due to COVID-19. This scheme will allow you to claim a taxable grant worth 80% of your trading profits up to a maximum of £2,500 per month for the next three months.
Find out more about eligibility and how to access the Self-employment Income Support Scheme (SEISS) here.
Claims for the third SEISS grant closed on 29 January 2021. Details about the fourth grant will be announced on 3 March 2021.
If you are self-employed, you may also be able to claim support through the Welfare system. What you can claim will depend on your personal circumstances and your means/savings. You may be able to claim New-style Jobseeker’s Allowance, New-style Employment and Support Allowance and/or Universal Credit. However, please seek specialist advice before making any claims.
If you already get benefits like Tax Credits or Housing Benefit, tell the office paying you that you can't work because you're sick or unable to work due to the shielding guidance. You might be entitled to more money while you're off work.
If you are going back to work, you will need to let them know.
If you are employed and are on sick leave, you may be able to get contractual sick pay or Statutory Sick Pay.
In the UK, those who are deemed to be incapable of work by reason of coronavirus now also includes a person who:
- is defined in public health guidance as extremely vulnerable and at very high risk of severe illness from coronavirus because of an underlying health condition; and
- has been advised, by notification sent to, or in respect of, that person in accordance with that guidance, to follow rigorously shielding measures for the period specified in the notification.
Across the four nations, people who are clinically extremely vulnerable are advised to work from home, and not to go to work if they cannot work from home. You may be eligible for Statutory Sick Pay or Employment and Support Allowance. Your shielding letter will act as evidence for your employer and the Department for Work and Pensions. You can read Government legislation on SSP legislation here.
You might still be able to get SSP after shielding has been paused if you can’t work from home and it’s not safe for you to go to work. You’ll need a fit note from your doctor to give to your employer.
If you are extremely clinically vulnerable and you live in a local lockdown area or you work in a local lockdown area but live outside it, you can claim SSP. You will be required to provide evidence to your employer that you are extremely clinically vulnerable. Further information can be found in the Work section (above).
Anyone not eligible to receive sick pay, including those earning less than an average of £120 per week, some of those working in the gig economy, or self-employed people, may be able to able to claim Universal Credit and/or New Style Employment and Support Allowance.
What you can claim, if you have no income, will depend on your personal circumstances and your means/savings. You may be able to claim New-style Jobseeker’s Allowance, New-style Employment and Support Allowance and/or Universal Credit. However please seek specialist advice before making any claims.
From 1 July 2020, claimants can make an appointment to see their work coach at a Jobcentre if they can’t get the help they want online or over the phone.
People can still make applications for benefits online if they are eligible.
Jobcentres were open to support people who were not able to use phones or the internet, including homeless people. From 1 July, Jobcentres are further opening up, with appropriate safety measures in place for COVID-19, to enable them to safely see more claimants. Work Coaches will be working with claimants to start to help them in their work search and creating and agreeing their Claimant Commitment.
If you are already claiming Universal Credit and think you may have been affected by coronavirus, please contact your work coach as soon as possible. You can do this through your online journal or by calling the helpline.
You can find out more here.
From Tuesday 17 March, face-to-face assessments for all claimants on disability benefits were suspended for three months. This temporary move was taken as a precautionary measure to protect vulnerable people from unnecessary risk of exposure to COVID-19 and affected claimants of Personal Independence Payment, those on Employment and Support Allowance and some on Universal Credit, and recipients of Industrial Disablement Benefits. The suspension also covers new claims to those benefits.
Take a look at our PIP telephone assessment factsheet (1.046MB) for more information and how to prepare.
This suspension should not disrupt processing of benefits claims or actual payments, and we advise people to keep an eye on updates from the official Government web page.
In January 2021 the DWP has said that the suspension of face-to-face assessments for health and disability benefits will continue until further notice.
My Claimant Commitment on my Universal Credit says I should be looking for work for a certain number of hours per week. However, I have to stay at home to protect my health/the health of the person with CF that I care for. Will I be sanctioned?
Your Claimant Commitment can be tailored to your circumstances and can also be reviewed and changed if needed at any time, and requirements can be ‘switched off’. Work Coaches have a broad discretion to customise your Claimant Commitment to meet your needs. However, if you have to stay at home under social shielding guidance, or you are a carer, you need to let them know. Find out more information on Universal Credit’s Claimant Commitments or childcare.
I’ve been advised to claim Universal Credit if I can’t work due to coronavirus but I’m not sure how I will cope with the five-week wait. Is there any help available?
It is possible to apply for an advance payment of Universal Credit, but this money does need to be paid back. You may be able to apply for a grant from the Cystic Fibrosis Trust, if you meet the criteria. There are also many other charities who offer non-repayable grants to help individuals on low incomes.
If required you can access advance payments upfront without needing to attend a jobcentre. Find out more here.
The Government will also provide local authorities in England with £500m grant funding to support economically vulnerable people who are impacted by the economic fallout of the virus in their local area. The Treasury expects most of this funding to be used to provide council tax relief, either through existing Local Council Tax Support schemes or through complementary reliefs. We do not yet know how accessible this help will be, but we will be monitoring the situation closely.
Please contact our Helpline if you need further information.
The Trust has always provided emergency grants (as well as a range of other grants) to those in financial need, in order to help everyone with CF stay as well as possible. We are expanding our grant programme to provide more emergency grants right now, to protect the health of those with CF who are facing financial struggles by ensuring they are able to afford the food and basic essentials they need. More information and the grant application form can be found on our emergency grants page.
Our Helpline team are on hand if you have any questions about our grants, and can also put you in touch with our Welfare and Rights Advisor.
Education and early years settings
Reopening of schools across the UK began in February. Further information about education across the four nations can be found in the general guidance links below:
This page is being regularly reviewed and updated as coronavirus advice and guidance changes.
Mental and physical health
Helpful advice on how you can maintain your emotional and physical wellbeing through a range of activities.
The impact on your CF care
Information on how the COVID-19 outbreak could affect your routine CF care, what to do if you contract COVID-19 and other frequently asked questions.
Coronavirus updates and FAQs
Important information for people affected by cystic fibrosis about coronavirus (COVID-19), and the latest guidance on how to stay safe.