How we can support you
Find out about our high-quality, trusted information and support to help everyone with cystic fibrosis (CF) live life to the full.
Whatever you’re going through, we have a range of information and services to help lighten the load.
Financial support we provide includes:
- Grants for people with cystic fibrosis to help with some of the costs associated with the condition, including emergency, transplant, health and wellbeing, holiday, home care, education and prescription pre-payment certificate grants.
- Support with applying for benefits, such as DLA, PIP or Universal Credit.
- Information on prescription charges and grants to cover the cost of a pre-payment certificate.
- Income Maximisation Service, supporting you to access our benefits advice and helping you make the most out of your money.
- Helen Barrett Bright Ideas Awards to help people with cystic fibrosis turn their hobbies into new businesses.
Student Support Service
Are you planning to study at university or college? Are you already a student, and need some help with budgeting, or you're thinking about applying for a Disabled Students' Allowance (DSA)? Find out how you can access individual, personalised support through our Student Support Service, to talk through your further or higher education student needs.
Support with work and employment
Need some support to tell your employer about your CF? Want to talk through your career options? Have you got questions about how to balance work and CF? Through our Work Forwards programme we can provide support on all aspects of work and employment to anyone affected by CF. You can contact the Work Forwards team by emailing [email protected].
Connecting with others
We know cystic fibrosis can sometimes be an isolating condition. You can share your experiences and concerns with other members of the CF community by joining our social network on Twitter, Facebook and our Forum.
For parents and families of children with CF we can put you in touch with a trained parent volunteer who can share their experience of life with a child who has cystic fibrosis through our CF Connect scheme.
Cystic fibrosis should not be a barrier that stops you from living the life you want - including going on holidays. Make use of our information on travel and cystic fibrosis.
We have a huge range of information packs and factsheets on a number of issues relating to cystic fibrosis. Our information packs cover a number of subjects in depth and can be downloaded or ordered as hard copies. Our factsheets cover a number of issues related to cystic fibrosis, including diagnosis, related complications like bone health and diabetes, CF treatments, nutrition, physiotherapy, the issues associated with living with CF, and preparing for transition.
Resources to promote our support services
Apply for our grants
Find out more about the grants we offer, from emergency grants for transplant assessments or funerals to health and wellbeing grants to help fund exercise equipment or household goods.
Whatever challenges you're facing, if you need someone to talk to try our scheme for connecting people with cystic fibrosis.
Contact our wonderful helpline team by telephone or email, Monday to Friday, for answers to your questions.