Helpline

Our Helpline is available to anyone looking for information or support with any aspect of cystic fibrosis, a listening ear, or just to talk things through. Our friendly team are here if you need us.

How to reach us

Call Us

0300 373 1000 or 020 3795 2184. We’re here Monday – Friday 10am – 4pm

Email Us

Send an email to helpline@cysticfibrosis.org.uk and a friendly team member will get back you

Chat with us

You can reach us on our social media pages

How we can help

We can:

  • Provide information about any aspect of cystic fibrosis
  • Offer a listening ear. We understand things can get tough; our friendly team are here to talk it through
  • Translate and help you to understand any overwhelming or complex information
  • Signpost to help and assistance available through the Trust, other organisations, and other avenues of support which may be appropriate
  • Provide information and guidance about other support and programmes ran here at the Cystic Fibrosis Trust including our welfare and grants support'

Who we are here for:

  • Those living with cystic fibrosis
  • Family, friends, and relatives of those living with cystic fibrosis
  • Teachers, employers, and other professionals
  • Anyone affected by cystic fibrosis
  • Anyone who has questions or wants to know more about CF
     

We’re not here to:

  • Offer clinical advice, diagnose, or provide medical intervention. Please speak to your CF team or your GP
  • Provide crisis support. If you are in crisis, please call the Samaritans on 116 123 or text SHOUT to 85258
  • Provide advice. We can provide information which can help you decide on your next steps. We believe in empowering people to make up their own mind. We can refer you for specialist benefits advice from our Welfare & Rights Advisor
  • Offer help with student essays and projects, please see our resources which have lots of information about cystic fibrosis
     

When you get in touch…

We will respond to emails and social media messages between 9am – 5pm Monday-Friday and will respond to emails within three working days.

Our Helpline is operated by a small team, so if we're already on a call, your call will be directed to a voicemail service: please leave a message with your contact number and we will get back to you as soon as possible. You can also leave a voicemail outside of office hours and we will return your call the next working day.

Calls to 0300 numbers cost no more than 5p per minute from a standard BT residential landline. Charges from other landlines and mobile networks may vary but will be no more than a standard geographic call and are included in all-inclusive minutes and discount schemes. If you are worried about the cost of the call, please tell us and we will call you back.

We keep an anonymous record of the types of calls and messages we get on the helpline, so we can continue to review and improve the service. The helpline is a confidential service. In very rare situations our team may need to break confidentiality. For example, if a caller is at risk of harm from themselves or others. You can read our privacy policy here

Peer Support

Forum

If you’d rather connect with someone with CF or affected by CF, or would rather get some information and guidance from those that are affected by cystic fibrosis, our forum is an active, anonymised space where you can post a question for someone affected by cystic fibrosis to respond to. Our social media and helpline teams also monitor all responses to ensure no questions go unanswered.

CF Connect

CF Connect is a service which can put you in touch with a trained parent volunteer who you can talk to in confidence about having a child with cystic fibrosis. To connect with another parent through CF Connect contact our helpline on 0300 373 1000 or helpline@cysticfibrosis.org.uk.

FAQs

Public awareness of cystic fibrosis is low; here's your chance to find out the most commonly asked questions about it.

What is CF?

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are over 10,600 people living with it in the UK.

Contact us

Get in touch with us to speak to someone on our Helpline, find out about an event or speak to our Press Team.

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