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Cystic Fibrosis Trust


We understand it can be complicated to negotiate the benefits system, especially during a period where the system is undergoing widespread change.

Applying for benefits 

When applying for disability benefits we suggest that you:

  • Prepare a 24-hour diary sheet showing a complete breakdown of care (this can also be an aid for completing the form)
  • Get a letter of support from your cystic fibrosis nurse and/or consultant
  • Ask your hospital if there is a social worker you can consult
  • We may be able to help by providing advice on your claim, which can include a letter of support if appropriate. Please contact our helpline on or 0300 373 1000 (Mon– Fri, 9am–5pm).

Useful sites

Other support available 

As well as the benefits mentioned above, financial support is also available through the following:

Financial support

The Cystic Fibrosis Trust provides financial support to help people deal with the challenges of living with cystic fibrosis. Find out if you're eligible for a holiday grant! 

Find out more

Find support

There's loads of support available for people with cystic fibrosis and their families, from grants to help with benefits.

Discover more


Contact our wonderful helpline team by telephone or email, Monday to Friday, for answers to your questions.

Contact us