We understand it can be complicated to negotiate the benefits system, especially during a period where the system is undergoing widespread change. Find out more about applying for benefits and how the Cystic Fibrosis Trust can support you through the process.

Applying for benefits 

When applying for disability benefits we suggest that you:

  • Prepare a 24-hour diary sheet showing a complete breakdown of care (this can also be an aid for completing the form)
  • Get a letter of support from your cystic fibrosis nurse and/or consultant
  • Ask your hospital if there is a social worker you can consult
  • We may be able to help by providing advice on your claim, which can include a letter of support if appropriate. Please contact our helpline on or 0300 373 1000 (Mon– Fri, 9am–5pm).


We have factsheets, information packs and publications on everything from transplant to starting school.

Find support

There's loads of support available for people with cystic fibrosis and their families, from grants to help with benefits.


Contact our wonderful helpline team by telephone or email, Monday to Friday, for answers to your questions.

Your donation will make a difference:

Select amount