Quality Improvement

Find out how the Cystic Fibrosis Trust’s Quality Improvement Team is working to improve quality of care in CF centres across the UK.

Quality improvement

What is Quality Improvement (QI)?

Quality improvement is about trying to make the health care you receive more:

Safe – trying to ensure the care you receive makes you better, not worse

Timely – do you receive the care and information you need, when you need it?

Effective – are the treatments and advice you’re receiving evidence-based? Do they work?

Efficient – helping your centre understand and use their resources to ensure optimal care

People-centred – ensuring your opinions on your care are listened to and acted upon

Equitable – reducing unnecessary differences in how care is provided across the UK

What does the Trust’s Quality Improvement Team do?

The QI team was established in 2018 to provide resources that help to support CF centres across the UK to improve the quality of the care they provide.

Current projects

Patient Reported Experience Measures (PREMs) Survey

Our UK-wide patient experience survey gives participating CF centres insights into what people with CF and their families think about the health care they receive. Results of the survey will be compared to the UK average for each question, to help centres benchmark their performance. This will help CF teams identify areas of best practice and opportunities for improvement. Successive PREMs surveys will track how people with CF feel about their care change over time, and help CF teams measure the impact of their Quality Improvement projects.

2019 paediatric survey

Twenty-six centres participated in the survey between 1 September – 31 March 2020. UK and centre reports will be available in early 2021.

2020 adult survey

A lot has changed in CF care since March 2020. If you receive CF care in an adult centre or clinic, we invite you to share your thoughts and experiences by completing the PREMs survey, open from 1 December 2020 until 31 March 2021. Your feedback will help your CF team make crucial decisions about how CF care is delivered in the future.

A list of the 26 participating centres is provided below. Your centre will have also sent out an invitation to participate via letter or email. If your centre is listed below then you can take part via the online survey, available in EnglishWelsh and Polish. The survey is available in Urdu (اُردُو‎) in paper format. Please contact us at QI@cysticfibrosis.org.uk to request a paper version of any of the four languages or to complete the survey over the phone with a member of the QI team.

English survey

Welsh survey

Polish survey

Participating centres

  • Aberdeen Royal Infirmary
  • Birmingham Heartlands Hospital
  • Bristol Royal Infirmary
  • Derriford Hospital
  • Frimley Park Hospital
  • Glenfield Hospital
  • King's College Hospital
  • Liverpool Heart and Chest Hospital
  • Llandough Hospital
  • Norfolk & Norwich University Hospital
  • North West Staffs, Stoke on Trent
  • Nottingham University Hospitals
  • Oxford University Hospitals
  • Queen Elizabeth University Hospital
  • Royal Brompton Hospital
  • Royal Cornwall Hospital
  • Royal Devon & Exeter Hospital
  • Royal Victoria Infirmary
  • Southampton General Hospital
  • St James's University Hospital
  • St. Bartholomew's Hospital
  • The Royal Papworth Hospital
  • University Hospital Lewisham
  • Western General Hospital
  • Wythenshawe Hospital
  • York Teaching Hospital

Staffing tool

This online tool, completed by the centres, aims to give a yearly snapshot of staffing resources in participating UK CF centres. Centres receive a report showing how their staffing and vacancy levels compare to UK averages.

2019 UK staffing report 

Download the Staffing Report (383KB)

2020 UK staffing report

Our 2nd annual capture of CF staffing levels has just closed, with input from 44 centres across the UK. A huge thank you to all the centre staff who provided information. The reports will be released in 2021 and will give CF teams the evidence they need to ensure that staffing levels across all areas of the multidisciplinary team are optimized for providing CF care and track changes in their staffing levels over time, in the context of any UK trends.

Quality Improvement Working Group

Our new Quality Improvement working group, made up of people with CF, their families, CF professionals and members of the Trust, held their first meeting on Wednesday 23 September 2020. The group is co-producing the Trust’s QI strategy and will develop key projects to improve CF care and services. 

Take a look at the latest meeting overview:

UK CF Registry

The Registry is an anonymised database of people with CF in the UK - a powerful tool for monitoring and auditing the care that people receive.

Resources for professionals

Explore the resources, programmes and awards that we offer to CF professionals to help them provide the best support they possible can to people with cystic fibrosis.


Contact our wonderful helpline team by telephone or email, Monday to Friday, for answers to your questions.

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