Press office

For journalist and media requests, contact the press office on 020 3795 2193 or email [email protected].

For more specific requests, please contact the Communications team directly:

Sarah Garnham - Media Manager
[email protected]

Contact Sarah for any general media related enquiries, urgent requests, signposting, statements, case studies or key spokespeople requests.

Nicola Quilter – Events and Celebrity Liaison Manager
[email protected]

Contact Nicola for any PR, event, or support requests regarding our celebrity ambassadors and supporters, or if you’d like to enquire about any of our conferences or CF Live events

Natalie Keffler – Communications and Events Officer (Internal and Celebrity PR Lead)
[email protected]

Contact Natalie for any enquiries regarding internal or external events (non- fundraising) or if you have any media enquiries regarding any of our celebrity ambassadors or events.

  • Key facts for the media

    Cystic fibrosis is an inherited disease caused by a faulty gene. This gene controls the movement of salt and water in and out of your cells, so the lungs and digestive system become clogged with mucus, making it hard to breathe and digest food 

    There are over 10,900 people with cystic fibrosis living in the UK and the population is growing every year. 

    In terms of the nations the numbers of people with cystic fibrosis is as follows: England 9,044; Scotland 925; Northern Ireland 485 and Wales 454. 

    Of those who died from cystic fibrosis in 2020, the median age of death was 36 years of age. 

    Two million people in the UK are carrying the faulty gene without realising it. If two carriers have children, there’s a one in four chance their child will have the condition, which slowly destroys the lungs and digestive system.  

    Learn more about cystic fibrosis

  • About Cystic Fibrosis Trust

    Cystic Fibrosis Trust is the only UK-wide charity dedicated to uniting for a life unlimited for everyone affected by cystic fibrosis.  

    The Trust funds cutting edge research, and provides confidential advice, support, and information on any aspect of cystic fibrosis, including help with financial support. 

    To contact the Cystic Fibrosis Trust Helpline call (+44) 0300 373 1000 or (+44) 020 3795 2184. 

    The work the Trust does is only made possible by the generous donations from supporters. Visit to find out more about cystic fibrosis, the work of the Trust and how you can help. 

  • Latest news

    The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.

    Read our latest news stories

  • Statements

    Find our statements and responses to events affecting people with cystic fibrosis (CF) here

    Read statements

  • Share your story

    Are you a person with cystic fibrosis, a friend or family member of someone with the condition or a CF professional? If you have a story you want to share, please email us at [email protected].

  • Our campaigns

    We're campaigning hard so that people with CF can live a life unlimited. 

    Find out more about our campaigns

Research we fund

We fund research to tackle some of the most pressing issues in CF today. Find out how your donations are making a difference.

What is CF?

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs. There are around 11,000 people living with it in the UK.

Contact us

Get in touch with us to speak to someone on our Helpline, find out about an event or speak to our Press Team.

Your donation will make a difference:

Select amount
Select amount