Statements

Cystic Fibrosis Trust responds to latest NICE update (19 December 2023)

Cystic Fibrosis Trust response to Autumn Statement (22 November 2023)

Creon 25000 capsules supply update (22 November 2023)

Reported ban of single-use vapes (12 September 2023)

COVID-19 autumn booster news (9 August 2023)

Cystic Fibrosis Trust respond to new Centre for Social Justice poll results (24 July 2023)

Cystic Fibrosis Trust reacts to ONS June inflation figures (19 July 2023)

Cystic Fibrosis Trust responds to expansion of NHS AMR pilot (12 July 2023)

Cystic Fibrosis Trust responds to 'Digital transformation in the NHS' report (6 July 2023)

Cystic Fibrosis Trust responds to the new NHS Long Term Workforce Plan (30 June 2023)

Cystic Fibrosis Trust responds to Trussell Trust's report 'Hunger in the UK' (28 June 2023)

Cystic Fibrosis Trust responds to AMRC's 2022 Medical Expenditure Report (27 June 2023)

Cystic Fibrosis Trust responds to JRF’s cost of living tracker (20 June 2023)

Cystic Fibrosis Trust responds to O'Shaughnessy's review of clinical trials landscape (26 May 2023)

Cystic Fibrosis Trust responds to £39 million cash injection for AMR research (22 May 2023)

Cystic Fibrosis Trust response to Spring Budget (15 March 2023)

Cystic Fibrosis Trust response to Ofgem energy cap increase (27 February 2023)

Cystic Fibrosis Trust response to Autumn Statement 2022 (7 November 2022)

Cystic Fibrosis Trust statement in response to PM Liz Truss speech at Conservative Party Conference (5 October 2022)

Cystic Fibrosis Trust statement in response to Chancellor, Kwasi Kwarteng’s speech at the Conservative Party Conference (4 October 2022)

Cystic Fibrosis Trust response to the Growth Plan 2022 (23 September 2022)

Cystic Fibrosis Trust response to the Energy Price cap announcement (12 September 2022)

Cystic Fibrosis Trust statement on the death of Her Majesty The Queen (12 September 2022)

Joint statement from the UKCFMA and UKPPCF on the emotional and mental health effects of new CFTR modulators in people with CF (5 September 2022)

Cystic Fibrosis Trust response to freezing prescription charges (16 May 2022)

Cystic Fibrosis Trust response to the Queen's Speech (10 May 2022)

Joint letters with leading health charities to Health Secretary Matt Hancock and Chancellor Rishi Sunak to demanding answers for those who are most vulnerable to COVID-19 (14 October 2020)

Joint letter with Age UK and other charities to the Chancellor, The Rt Hon Rishi Sunak MP, calling for support for people who may not feel safe enough to return to their work place after shielding (31 July 2020)

Joint letter with Macmillan Cancer Support and other charities to The Rt Hon Michael Gove MP in the Cabinet Office, calling for clearer guidance on shielding and what the future may hold as restrictions are eased (28 May 2020)

Response to Environment, Food and Rural Affairs Committee Inquiry into food supply during the Coronavirus pandemic (20 May 2020)

Letter to Rishi Sunak from David Ramsden regarding financial support for people with CF during coronavirus (27 March 2020)

Letters to Arlene Foster, the Department for Environment, Food and Rural Affairs, Mark Drakeford and Nicola Sturgeon regarding plans for social shielding (27 March 2020)

Letter to UK supermarkets regarding access to food for people with CF during the coronavirus outbreak (26 March 2020)

Cystic Fibrosis Trust's Safeguarding policy statement (November 2019) 

Letter to Petitions Committee from Cystic Fibrosis Trust (11 June 2019)

Letter from David Ramsden, Chief Executive, to Dr Sarah Wollaston MP in response to NHS, NICE and Vertex correspondence (4 June 2019)

Statement on the NHS offer to Vertex for Orkambi and Symkevi (23 May 2019)

Letter from Ian Austin MP to Prime Minister Theresa May (16 May 2019)

Marking the anniversary of PM Theresa May wishing for a "speedy resolution" on Orkambi (16 May 2019)

Cystic Fibrosis Trust calls for immediate access to life-saving drugs (7 March 2019)

Creon shortage - Oxfordshire & Surrey (26 July 2018)

Mylan announces temporary Creon shortage (12 June 2018)

Cystic Fibrosis Trust appoints David Ramsden as new Chief Executive (12 October 2016)

Cystic Fibrosis Trust's response to the NHS England decision that complex heart surgery should no longer be provided at the Royal Brompton & Harefield NHS Foundation Trust (8 July 2016)

Cystic Fibrosis Trust's response to the NHS England funding decision for Ivacaftor (Kalydeco) for two to five year olds (4 August 2016)