News

“When I look at Philippa, I'm always hugely inspired by the positivity she’s shown in very difficult circumstances” – Nick and Philippa’s story

Nick will be running this year’s London Marathon as part of #TeamCF. We caught up with Nick and his sister, Philippa, who has cystic fibrosis, to hear about their childhood memories, their hopes for the future of CF, and why Nick was inspired to run for Cystic Fibrosis Trust. 

“So much about my life and the world I am part of, but was always somewhat bewildered by, just makes more sense”: Emma’s autism diagnosis

Emma, who is autistic and has CF and an eating disorder, tells us about her late autism diagnosis, how it impacts her experience of CF, and what her team do to support her. 

Content warning: this piece contains reference to eating disorders. 

“In those toughest moments, I know what will keep me going is that I’m running for everyone with CF”

On Sunday 27 April, tens of thousands of people will be limbering up for the 2025 London Marathon! With just days to go, we caught up with some of the amazing runners who are part of #TeamCF to hear about their motivations for taking part.  

“I’m forever grateful for those unseen scientists working behind the scenes”

This spring, we're asking you to help us fund research into CF lung infections – and make sure everyone with CF can live a life unlimited. In this blog, we chat to Sarah, 39, about her experience of lung infections, the ups and downs of her CF journey, and her hopes for future research breakthroughs. 

“Growing awareness of neurodiversity is incredibly important for children with CF and additional needs”: Jess and Ellie’s story

Trust community fundraising manager Jess tells us about her daughter, Ellie, who has cystic fibrosis (CF) and special educational needs. 

New cystic fibrosis report reveals impact of staffing issues

Access to a specialist team of professionals is critical to the care, treatment and life expectancy of people with cystic fibrosis, a life limiting genetic condition without a cure. But like other parts of the NHS, CF services are facing issues with vacancies and recruitment. 

Trust Venture and Innovation Award funds research exploring new ways to study CF lung infections

Our Venture and Innovation Awards (VIAs) are matched funding grants that allow CF researchers to take advantage of new opportunities and exploit new methods in CF research. A VIA award to Prof Martin Welch, co-funded by University of Cambridge, is supporting Jemima Swain’s PhD studies. The aim of her research is to understand more about how different bugs that cause CF lung infections affect each other. We caught up with her to learn more. 

New national campaign is launched to raise awareness of AMR

Today, 7 April, the UK Health Security Agency (UKHSA) have launched a new campaign to raise awareness of antimicrobial resistance (AMR). Here we share details of the campaign, recent research we've been doing to help battle CF infections, and why we need funds to continue this work.