News

Call on your MP to protect vital support for people with CF

The Government’s planned changes to disability benefits could significantly affect people with CF across the country. 

International Clinical Trials Day: Why are Clinical Trials Important?

Today is International Clinical Trials Day, and we would like to take a moment to thank everyone that has supported CF clinical research over the years.

Wear Yellow Day is coming! Here’s how your support makes a difference

Wear Yellow Day is happening one month today (13 June) – and we’re so grateful to everybody who is getting involved. However you choose to fundraise, all the money raised will help change the future for people with CF. Here’s how… 

Celebrating Team Ewan

Colleen and Mike, whose son Ewan has CF, are part of Team Ewan, which has raised an incredible £70,000 for the Trust over the years. They opened up to us about dealing with diagnosis, fundraising, and their hopes for Ewan’s future.

MHRA issues Drug Safety Update for Kaftrio

The UK medicines regulator, the Medicines and Healthcare products Regulatory Agency (MHRA), have today published an update on Kaftrio highlighting a small increase in the risk of psychological side effects.

Introducing our new resource for children affected by CF

We are excited to announce that our new resource for children, Cracking the CF Code, is out now! This resource was completely written by young people in our Youth Advisory Group (YAG), and they use their knowledge and experiences to explain tricky medical words and concepts to 6–9-year olds. Tilly, who is a member of YAG, explains more about the inspiration behind it. 

“I want Ezzah to achieve anything she wants to in life”

With your support this Wear Yellow Day (13 June), we can get closer to a life unlimited for children with CF like Ezzah. 

Ezzah’s mum Nilofer shares what the support of Cystic Fibrosis Trust has meant to their family. 

“It’s really important that we continue to raise awareness about neurodiversity and CF”: Jimmy's story

Cystic Fibrosis Trust Work Forwards manager Jimmy, who has cystic fibrosis (CF), talks about going through the assessment process for ADHD and the importance of raising awareness of neurodiversity and CF.