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The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.

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Work Forwards: Gemma’s career story

As part of our Work Forwards programme of employment support, every week we will be sharing the career stories and insights of people from the CF community. We chatted to Gemma, who has a son with CF, about her career as a social worker and children’s therapist – and how she balances her work-life with being a mum of four!

Work Forwards: Harry's career story

As part of our Work Forwards programme of employment support, every week we will be sharing the career stories and insights of people from the CF community. Today we're shining the spotlight on Harry, who runs a film production company called Room 18 film and works as a store manager at Specsavers. 

"When you’re impacted by CF, you want to be able to give something back."

We spoke to Carl about his son Rhys, who won a Child of Wales award last year for his incredible fundraising work

Help shape the NHS 10-year plan and make sure the voices of the CF community are heard

The Government is working on a 10-year plan for the NHS. Cystic Fibrosis Trust is supporting to make sure the voices of people with CF are heard and included. Join us on 6 February to have your say. 

New research into methods to find out the effects of treatments: Why it matters

It can take a long time to truly understand the effects of new treatments, and this may include different types of studies beyond traditional clinical trials. In a new study that has just begun, Professor Ruth Keogh and Dr Emily Granger, CF researchers at the London School of Hygiene and Tropical Medicine, are working with doctors and CF community members to develop new ways of looking at data on CF treatments in our UK CF Registry. Here they explain more about their study, and how you can get involved.

Make your cuppa count this FeBrewary

FeBrewary is back for 2025 and by holding your own tea party or coffee morning, you can help fund research to find better treatments that work for everyone with CF. 

Join Bethany and be part of Team CF in 2025

In 2025 our supporter Bethany is taking on her biggest challenge yet: running 10 marathons in 10 weeks! Here she shares her CF story and why you should be part of Team CF. 

Our December Media Roundup

In our end-of-year media roundup, we look back on a December where we celebrated our amazing fundraisers, held our festive Carols by Candlelight service, and continued to raise awareness of CF.

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