Media roundups
Find our latest monthly media roundups of the latest news and events affecting people with cystic fibrosis (CF) here.
If you need to get in touch with our press team, please contact [email protected] or call 020 3795 2193.
2025
April
This month, we saw a record number of our dedicated supporters complete the London Marathon and take on other exciting fundraising challenges for the Trust.
March
The MHRA approved a new modulator, the Trust continues to fund vital research for cystic fibrosis, our Trustee completes a record-breaking challenge, and our amazing supporters get ready for the London Marathon.
February
This month we held a journalist briefing at the Science Media Centre, recruitment began for a new genetic therapy trial, our supporters continue to take on challenges for the Trust, and there was further coverage on the Creon supply issues.
January
This month, our Trustee set off on her Atlantic row challenge, there was further coverage on the Collaborative Discovery Programme and our supporters continue to raise awareness of CF.
In the news
Check out the latest news about cystic fibrosis, from new developments in research to nationwide campaigns, including local, national and international stories
Life unlimited
Find out about our mission to create a brighter future where everyone with cystic fibrosis can live long and healthy lives, unlimited by the condition
What is CF?
Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are over 10,000 people living with it in the UK
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2024
December
In our end-of-year media roundup, we look back on a December where we celebrated our amazing fundraisers, held our festive Carols by Candlelight service, and continued to raise awareness of CF.November
This month we held our 60th anniversary awards ceremony, launched our festive campaign and published our registry report.October
Featuring the launch of the Innovation Hub network, amazing fundraising challenges, and people affected by CF raising awareness of the condition.September
This month our amazing fundraisers ran the Great North Run, we continued to work on Creon and commented on the latest NHS report.August
Featuring Scotland's permanent modulator access agreement, our new diagnosis pack, a charity football match and our work raising awareness of the Creon shortages.July
Featuring Scotland's permanent modulator access agreement, our new diagnosis pack, a charity football match and our work raising awareness of the Creon shortages.June
Featuring permanent modulator access agreements, our work on the Creon shortages, Your Life and CF and the King's Birthday Honours announcement.May
Featuring our latest awareness campaign, new research grants and our work on Creon shortages.April
Featuring our amazing marathon runners, our response to the reported PIP changes, and short film Cherry Blossoms in March. -
2023
September
CF Registry data to charity fundraisers, scientific journals to modulator access.August
From prescription charges campaigns to comedians with CF, children's books to Autumn COVID-19 boosters.July
From celebrity ambassadors to podcast appearances, Strategic Research Centres to epic fundraising.June
From celebrating CF Week to annual conferences, cost of CF Surveys and funding grants.