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July Media Roundup
Alyftrek approved by NICE, and NHS England extends access
The National Institute for Health and Care Excellence (NICE), approved the once-a-day triple therapy, Alyftrek (vanza triple).
NHS England also confirmed an extension to eligibility for Kaftrio and Alyftrek, giving access to more people with CF. Further announcements are expected to follow in Scotland, Northern Ireland and Wales.
We shared a video from our CEO, David Ramsden, you can watch it here and read the news story and FAQs on our website.
Government launches new life sciences plan
The Government launched a £2 billion life sciences sector plan, which will prioritise investment in health data and speed up clinical trials.
The key goals of the new plan are to enable world class research and development, attract and grow investment in the UK, and drive better outcomes for patients through innovation and reform.
It was developed with input from doctors, scientists, NHS leaders and industry experts, and builds on the 10-Year Health Plan, which the CF community helped to shape.
To find out more, read the news story on website.
Golfing for CF
Catherine, Lady Captain of the Mid Sussex golf club, spoke to BBC Radio Sussex about hosting a fundraiser in honour of her five-year-old granddaughter, Sienna, who has CF.
The Charity Summer Mixed Golf Day, was a huge success raising over £5,000 for the Trust.
Catherine was also in Sussex World, talking about the fundraiser ahead of the event. Catherine said: “This is about raising money but also raising awareness. Every bid, every round played, and every smile on the day will help support the amazing work of the Cystic Fibrosis Trust.”
Comedian continues to shine a spotlight on CF
Yvonne Hughes, who has cystic fibrosis, was featured in The Guardian. She shared her story of living with CF, speaking about the health challenges she has faced and how Kaftrio completely changed her life.
Yvonne previously worked at the Trust and later changed career paths. She is now a stand-up comedian, returning to the Edinburgh Fringe for the third time this summer.