May Media Roundup

The Trust’s Spring Appeal

This month, our Spring Appeal, highlighting the importance of research into CF lung infections, was covered in The Aberdeen Press and Journal. 

It featured Chloe, who had cystic fibrosis, and went into hospital in 2006 with a chest infection but sadly never made it home. Chloe’s parents, Tom and Grace have set up a research fund in her memory at the University of Aberdeen. 

You can read more about the appeal and watch the video here.

Tom’s first haircut 

Thomas, who has cystic fibrosis and is only three-years-old, had his long locks cut off, donating the hair to Little Princess Trust, and raising money for Cystic Fibrosis Trust. 

Thomas’ parents, Sophie and Nicky, waited until he was ready to decide he wanted his first cut, and said: “Watching our son take this step, knowing all he already endures, fills us with pride. It’s a powerful reminder that even the smallest among us can do big, meaningful things.” 

“The Trust means so much to us. Its support, research, and advocacy make a real difference for families like ours, and we want to give back”

You can read more about the story here. 

Six marathons in six days

Simon and Rob spoke to BBC news about their incredible achievement, completing six ultramarathons in six days.

The friends covered 180 miles, starting with the London Marathon and continuing for the next five days.

Rob said: "The charities we support desperately need the funds," and "we know that the money is going to be put specifically to medical research.”

The funds raised will be donated to Cystic Fibrosis Trust, SUDC UK, and Chestnut Tree House Children's Hospice.

You can read their story here. 

Leap for Lottie

Kendall, whose one-year-old niece, Lottie, has CF will complete a skydive challenge to raise funds for the Trust. 

Kendall confessed that she’s afraid of heights and flying, and the skydive will be a huge personal challenge but it’s nothing compared to what those with CF go through on a daily basis.

Kendall said: “I’m raising money for the Cystic Fibrosis Trust - to help fund vital research, support those affected and their families, to push for broader access to treatments, and help fight for a world where no one is left behind. A world where CF finally stands for Cure Found.”

You can read the full story here and read more about Lottie’s story on our website.