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Our May Media Roundup

News -

Featuring our latest awareness campaign, new research grants and our work on Creon shortages

Awareness campaign

We launched our latest awareness campaign with Jonathan, a 60 year old with CF who spoke about having “no day off” from CF. Speak out and share your CF truth on social media by downloading our social media graphics, tagging @cftrustuk and using the hashtag #CFTruths.

Creon

We worked with a number of news outlets on the difficulty some people with CF are having sourcing Creon, including Sunday Times and the Express. Please visit our website for the latest information and advice.

You can also read our latest blog on this here.

Research grants

We announced our latest round of research grants, totalling over £2 million in a special media round-up. These four new grants look to address the research priorities that matter most to people affected by CF. You can watch our video and read more on the website.

Sophie's Marathon World Record

Sophie Grace Holmes completed her world record marathon challenge, running 36 marathons in 36 days, and raising more than £25,000 for the Trust. Congratulations Sophie!