#CFTruths
People with cystic fibrosis (CF) have to do hours of treatments every day, just to stay well.
Taking up to 150 tablets a day. Following special high-calorie diets. Daily exercise and respiratory physio. Plus regular clinic appointments, and weeks in hospital to fight infections. All this day in, day out, because if you don’t, your health could seriously suffer.
79% of people with CF say that in the last 12 months, their physical health has prevented them from living life to the fullest.
People with CF never get a day off.
Improvements over the past 60 years have made life better for many, but as old problems diminish, they can bring new challenges and fears. And there still is no cure.
That’s why we won’t stop until CF does.
Cystic fibrosis is a 365 day a year, 24 hour treatment regime... it doesn't stop. You never get a day off.
– Jon, who has CF
How you can get involved
Speak out and share your CF truth. You can download our social media graphics and help others understand what everyday life is like for people with CF. Remember to tag us @cftrustuk and use the hashtag #CFTruths to join the conversation.
Stay in touch. Sign up to our monthly enewsletter for all the latest CF news, personal stories and different ways you can get involved in our work.
Donate. With your help, we can fund vital research and ensure everybody with CF can live a life unlimited.
Start a conversation. Starting a conversation with friends, family or colleagues about CF can raise vital awareness. If you’re struggling to find the right words, our Talking Toolkit has some tips that might help.
Share your story. Email us at [email protected] to share your experiences of CF.
CF: Know your facts
Learn more about CF, including how it is diagnosed, how it's treated, how it affects the body and what causes it.
Talking toolkit
Tips, blogs and resources to help you start conversations about CF.
Cystic Fibrosis Trust: Since 1964
For 60 years, we’ve overcome challenges and celebrated breakthroughs. Always learning and moving forward. And we won't stop until CF does.
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Sign up to our monthly enewsletter for all the latest CF news, personal stories and different ways you can get involved in our work.