Connect with others

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Connect with others

We know that cross-infection can make it difficult to connect with others – but we're here to help.

Sometimes the best support comes from others who are in the same boat. That's why we're here to help you connect with other people with cystic fibrosis (CF) or parents of children with CF.

  • CF Connect

    CF Connect is our peer support service for parents of children with CF. CF Connect puts you in touch with a trained parent volunteer who you can talk to in confidence about having a child with cystic fibrosis.

    Find out more about CF Connect

  • Online community

    Our community forum is a great place to meet others affected by CF. It’s a safe space to seek information, access support, and chat with others who know what you’re going through.

    Join our online community

  • Involvement Group

    Donate your time, expertise, and the knowledge you’ve gathered along your CF journey  –  no matter where you are in that journey.   

    By signing up to join the Involvement Group, you can share your insights and make sure that the lived experiences of people with CF are at the core of everything we do. 

  • Share your story

    Sharing your story, and reading the stories of others, can be a great reminder that there are others who understand what you're going through.

    If you'd like to share your story with us, please email [email protected]. 

    You can read the stories of others affected by CF in our news section.

  • CF Youth

    We have loads of events, support and opportunities for young people with CF and their siblings and friends. 

    At Building Brighter Futures we run free online events and workshops for 6–14 year-olds with cystic fibrosis. 

    And our Youth Advisory Group (YAG) is a group of young people aged 14–25 who have CF, or who have a close family connection to someone who has CF, who influence work at the Trust and make sure that the voices of young people with CF are heard.

    Find out more about our CF Youth programme

  • Work Forwards

    Our Work Forwards programme offers free tailored careers information, advice, and guidance for people with CF and their loved ones. As well as resources and one-to-one support, we regularly hold events where you can hear from others with CF about their worklives.

    If you're looking for inspiration, check out our employment stories library to read about some of the amazing things people with CF are doing in their careers.

    Check out Work Forwards

  • Connect with us on socials

    Follow our socials to connect with the community, stay updated on news and events, and share your own experiences.

Here to help

If you’re struggling with any aspect of cystic fibrosis, we’re here to help. Contact our Helpline for support, a listening ear or just someone to talk to.

Get support

Financial support

We support people with cystic fibrosis and their families every step of the way, from welfare grants, support applying for benefits and information and advice for times in financial need. 

Find out more

Work and education support

If you have CF and are looking for, or want to stay in, work or education, we can support you.

Live without limits