Strong Beginnings
We run free online events for parents and carers of babies and young children with CF (aged up to 6 years).
At these events families with young children with CF can connect with each other, in a supportive and understanding environment. We use the video calling platform Zoom to bring you together safely.
We are really interested to hear what you think of the events. We would love to hear from you if you have any ideas for events to run in the future. Please email [email protected] with any questions, suggestions or to find out more and sign up!
Ask YAG
In March 2024 we held a special Strong Beginnings event. Young people from our Youth Advisory Group kindly answered questions sent in by parents of children with CF.
Coming up...
Ask YAG event for parents of children with CF
16 January 7.30-8.30pm
The young experts from our Youth Advisory Group are getting together online to answers parents' questions and share their words of wisdom. If you're a parent of a child with CF aged 0-18 and would like to join this event please send your questions for the group to [email protected].
Physio event for parents of children with CF aged under 2
10 February 7.30-9.00pm
Two paediatric CF physiotherapists will be joining us to give a short presentation about physiotherapy for young children with CF. Then there will be a chance for you to ask questions, and speak to each other about your own experiences of CF physio.
Tea and coffee corner for parents of children with CF aged under 2
25 March 7.30-9.00pm
This is a space to come and meet and chat to other parents of children with CF aged 2-4.
Spaces are limited! If you'd like to sign up or find out more, then get in touch with the youth team at [email protected]. You can also keep up to date at @CFtrustyouth on Instagram.
Festival fever
Download our festival planning information, which is full of loads of great tips for making sure you have the best time possible.
Pre-school and primary school
Starting pre-school or primary school can be an exciting and daunting time for parents, particularly if your child has cystic fibrosis (CF).
What is CF?
Cystic fibrosis (CF) is a genetic condition affecting around 11,000 people in the UK.