Strong Beginnings

parents and baby

Strong Beginnings

Find out more about our events for parents and carers of babies and young children with CF.

Strong Beginnings is a series of free online events for parents and carers of babies and young children with CF (aged up to 6 years).  Find out more about how you can get involved!

These online events are an opportunity for families with young children aged 0 to 6 with CF to connect with each other, in a supportive and understanding environment.  We use the video calling platform Zoom to bring you together safely, and from the comfort of your own home.  

This is a new area for us, so we are really interested to hear what you think of the events and would love to hear from you if you have any ideas for events to run in the future.  Please email [email protected] with any questions, suggestions or to find out more and sign up!

Ask YAG

In March 2024 we held a special Strong Beginnings event. Young people from our Youth Advisory Group kindly gave their time to answer questions sent in by parents of children with CF.

Coming up...

Baking for parents and children with CF aged 4-6

23 July 4.30pm-6pm 

Led by the wonderful Cicely (a young adult with CF) we will be baking some delicious vanilla cupcakes with colourful swirls! 

 

Art workshop for parents of children with CF aged 0-2

23 August 7.30-9pm

This fun and relaxed art workshop for adults gives you an opportunity to meet other parents of children with CF aged under two, while creating some lovely arts and crafts.  You don't need to have any artistic skills and we'll be using easy materials to find around the house!

 

Peer support group for parents of children with CF aged under 1 year

16 September, time TBC

This is a space to come and meet other parents of babies with CF aged under a year.  We will be having a kind and sensitive discussion, centred around the theme of taking care of ourselves, while managing CF and caring for a new baby.  

 

Spaces are limited!  If you'd like to sign up or find out more, then get in touch with Ellie at [email protected].  You can also keep up to date at @CFtrustyouth on Instagram.

Festival fever

Download our festival planning information, which is full of loads of great tips for making sure you have the best time possible.

Pre-school and primary school

Starting pre-school or primary school can be an exciting and daunting time for parents, particularly if your child has cystic fibrosis (CF).

What is CF?

Cystic fibrosis (CF) is a genetic condition affecting around 11,000 people in the UK. 

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