Strong Beginnings
We run free online events for parents and carers of babies and young children with CF (aged up to 6 years).
At these events families with young children with CF can connect with each other, in a supportive and understanding environment. We use the video calling platform Zoom to bring you together safely.
We are really interested to hear what you think of the events. We would love to hear from you if you have any ideas for events to run in the future. Please email [email protected] with any questions, suggestions or to find out more and sign up!
Coming up...
Parent Connect for parents of neurodiverse children with CF
29 April 7.30-9.00pm
This is a space to come and meet and chat to other parents of neurodiverse children with CF
Parent Connect for parents of children with CF aged 0-1
20 May 7.30-9.00pm
This is a space to come and meet and chat to other parents of children with CF aged 0-1
Meet CF Dietitians for parents of children with CF aged 0-1
3 July 7.30-9.00pm
We will be joined by two CF dietitians, who will do a short presentation and answer any questions you have. Then there will be a chance for you to talk to each other about your experiences, with the two professionals there to help if you need it.
Parent Connect for parents of children with CF aged 0-1
22 July 7.30-9.00pm
This is a space to come and meet and chat to other parents of children with CF aged 0-1
Spaces are limited! If you'd like to sign up or find out more, then get in touch with the youth team at [email protected]. You can also keep up to date at @CFtrustyouth on Instagram.
Festival fever
Download our festival planning information, which is full of loads of great tips for making sure you have the best time possible.
Pre-school and primary school
Starting pre-school or primary school can be an exciting and daunting time for parents, particularly if your child has cystic fibrosis (CF).
What is CF?
Cystic fibrosis (CF) is a genetic condition affecting around 11,000 people in the UK.