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Cystic Fibrosis Trust

Youth Advisory Group

We need your help. We are looking for young people all over the UK to voice your opinions about living with cystic fibrosis (CF).

We want to hear your ideas 

On paper, the Youth Advisory Group (YAG) is a way for young people to influence work at the Trust and ensure that the voices of young people with CF are heard. In practice, it’s that and loads more. We discuss, share, laugh and cough our way through our monthly online hangouts and drink more tea than is probably entirely necessary. It’s a great way to meet amazing people and make a change.

YAG members have had social media training, vlogged at Bestival, worked on an award-winning CF app and loads more. We’re always looking for new people to join in, so if you’re 14-25 and would like to get involved or give it a go shoot us an email at hollyrae.smith@cysticfibrosis.org.uk or stalk us on Twitter at @CFTrustYouth

Who are we?

We are a group of young people aged 14-25 who are living with CF or close to someone living with CF. We are joined at our monthly meetings by Holly-Rae Smith, the Trust’s Youth Empowerment Officer. Occasionally other professionals will join us as well, for training, to let us know about upcoming projects or just to say hello. We are all passionate about the wellbeing of children and young people living with cystic fibrosis.

Meet YAG!

Can't take part right now?

Stay in touch! There are lots of other things that you can be involved with:

  • Regular games nights on X Box One and PS4.
  • Opportunities to share your story with us and help our information resources.
  • Volunteering opportunities - we've had volunteers with CF working from home to boost their CVs, UCAS or Duke of Edinburgh Award.
  • Chat to us on Twitter @CFTrustYouth.

If you have any comments, ideas or questions, please feel free to contact Holly-Rae Smith, Youth Empowerment Officer at the Trust at hollyrae.smith@cysticfibrosis.org.uk.

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