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Cystic Fibrosis Trust

Youth Advisory Group

We need your help. We are looking for young people all over the UK to voice your opinions about living with cystic fibrosis (CF).

We want to hear your ideas

Are you: - Aged 11-25 years? - Living with CF? Or close to someone living with CF? - Passionate about the wellbeing of children and young people living with CF? - Ready to make change happen? We are recruiting a group of young volunteers to shape the support that you get from the Cystic Fibrosis Trust. The group will meet online every 4-6 weeks to discuss issues important to them and use their skills and talents to engage with other young people living with CF and their families. These discussions and decisions will influence the Young Lives project – a project designed to empower and engage young people with CF and those close to them. We want to hear from you. We will give you support so that your ideas can become reality.

Get involved

To apply for this volunteering role you can make a video, write your answers down, create a comic, make a poster – however you feel comfortable sharing your ideas.

Be sure to include the following in your application:

  • Tell us a little bit about yourself 
  • How would you involve more young people in the Trust’s work? 
  • What does CF mean to you?

Also include your name, address and date of birth in an email and send your application to

Can’t take part right now?

Stay in touch! If you would like to be involved with the Young Lives project in the future, or if you apply and are unsuccessful (as spaces on the group are limited) there will be lots of other chances. Future volunteering opportunities, surveys, polls, workshops and discussions will be advertised on the Trust’s forums and social media pages.

If you have any comments, ideas or questions, please feel free to contact Holly-Rae (Youth Empowerment Officer at the Trust) at  or 07342 881816.


The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

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What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

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