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Cystic Fibrosis Trust

Local branches

Bromley Cystic Fibrosis Family & Friends
A brand new group set up by Lisa Ellams and Sonia Willgress who recently organised a Family Fun Day in Bromley which raised over £2,700 for the Cystic Fibrosis Trust. They are aunty and mum to Luca who has cystic fibrosis and they are looking to engage with other people in the area who are affected by cystic fibrosis and wishing to support the Cystic Fibrosis Trust.

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CFTwo Group
The CFTwo group began in 2007 as the Young Professionals and has grown in size and enthusiasm ever since! Our members are in their 20s and 30s with full-time jobs, but rather than being a traditional 'local' fundraising group, we are a network of friends based all over London, with a united passion for eradicating cystic fibrosis.

We hold bi-monthly quizzes, an annual Classical Concert & Supper and co-organise the Dulwich Park Fun Run which, this year, raised over £17,500 for the Cystic Fibrosis Trust.

You don't need to be a 'young professional' to join our group, just a desire to help organise great fundraising events to support the Cystic Fibrosis Trust!

Visit our Facebook page or the CFTwo website.

Greenwich and Blackheath Cystic Fibrosis Trust Fundraising Group
Contact: Rose Dailey, Sacha Bright or Mary Bright

Since our formation in 2008 we have raised over £70,000 with a variety of local events including a fabulous Crimson Ball, an annual Quiz Night, Blackheath Christmas Shopping Evening and more recently a Bags and Baubles Extravaganza. We would warmly welcome anyone who wishes to join us and help to organise these and more events.

Kingston & Epsom Branch
Contact: kingstonepsomcftrust@hotmail.com

We are a long-standing fundraising group based in south west London. We are all personally connected to cystic fibrosis and are extremely dedicated to raising as much as we can for the Cystic Fibrosis Trust. We aim to hold around 12 events a year, though it usually ends up more than this, and would welcome any new-comers from the area to our group. Our main events include a curry night, bridge nights, a golf day, a ball and Christmas events in October/November selling our famous reindeer food!

In June 2014 one of our members, Sarah, instigated 'Jump for Ruby' which saw 17 friends, family and Sarah herself jump out of a plane to raise over £8,000 for the Trust!

North East London Branch
Contact: Sue Lawrence or Janet Green

We have been going for over 30 years, and have a history of successful fundraising for the Cystic Fibrosis Trust. Although the original members have taken well deserved retirement, we all have a personal connection to cystic fibrosis; whether through our children or our friends' children. We would love to have some new volunteers to join our ranks, give us some new ideas and help grow our numbers and ensure that the group continues fundraising for the next 30 years!

The next event on our calendar is the Thorndon Park Walk and Treasure Hunt on Sunday 7 September 2014, perfect for all the family! Contact us on the details above or come along on the day from 10am (Thorndon Country Park South car park off the A127, near Brentwood).

Sixty-Five Roses Ball
The committee organises Sixty-Five Roses Balls in London. The first was held at the Banqueting House in Whitehall in 1998 and they have been held almost every two years since then. So far they have raised over £800,000 for the Cystic Fibrosis Trust. The organising committee comprises people from all over the UK, many of whom have children with cystic fibrosis.

Why Sixty-Five Roses? This expression originally came from Australia from a child with cystic fibrosis who overheard his mother talking about him and thought she had said that he had sixty-five roses.

This year the 65 Roses Ball is taking place at The Dorchester Hotel, London on Thursday 18 June. For tickets and further information please go to their website.

Berkshire 
Fundraising bought us together but we are more a group of good friends than a formal branch. Our favourite fundraising activity is arranging our legendary balls. We try to arrange a black tie dinner with auction, live music and all of the usual trimmings, every second year. We are out to enjoy our fundraising so Abba nights, Christmas stalls and race nights are also often on our list of things to join in with. We very much welcome new volunteers, we meet informally in a pub in Wokingham. If you'd like to come along you will be made most welcome.

South Buckinghamshire Branch
Contact: Jane Wood
Email: wood.jane@btinternet.com

The most successful and exciting fundraising activity is a biannual Black Tie ball which is next due in 2014. We do of cause welcome and support many any other local fundraising events and opportunities. We work very closely with our regional fundraising manger to enhance the Cystic Fibrosis Trust's profile. We welcome support of any kind, so please do get in touch.

Dunstable
Contact: Pam and Mike Harrison
Email: mike.harrison1@ntlworld.com

We are a group of grannies granddads, mums and friends who love to arrange community stalls, car boots, collections, walks and anything else that happens to come our way.
Our big regular event is the Ashridge forest walk, it’s a great fundraiser but we always combine it with picnic so it’s also brilliant for meeting new supporters and families.

Oxford Branch
Contact: Martin Powell
Email: martin.powell@btconnect.com

We are a very friendly, active and successful branch of the Cystic Fibrosis Trust who are passionate about fundraising and raising awareness. Our fundraising activities include a quiz night, live music gigs and collections, however, we welcome any ideas to boost our fundraising achievements further. We come from all walks of life, vary in ages but all share the common goal of helping in the fight against cystic fibrosis. We meet informally in Cumnor Hill once every four or five weeks. We very much welcome new supporters so please do come along to join us.

Headcorn Branch
Contact: Sandra Lee
Email: sandra.l@btconnect.com
Phone: 01622 892 131

Headcorn Branch is committed to raising awareness of cystic fibrosis in the local area. The branch organises quizzes and supports other Kent events. In the past the branch has organised some very successful Balls including an event at Leeds Castle.

Portsmouth Branch
Sue Kruk
Email: zyg@kruk.co.uk
Branch Secretary
02392 469 104
https://www.facebook.com/CFPortsmouth

We are a group of CF Supporters who meet and put on a few events each year. We have a casual/informal monthly meeting at various homes on Hayling Island, in Gosport, Locks Heath and Sarisbury Green.

If you live in the area and would like to get involved we would love to hear from you. Email  CF Portsmouth Branch at: william.allday@ntlworld.com

Swanley Branch

Contact: Kelly Older 
Email: kelly_cf_fundraiser@yahoo.co.uk
Phone: 07941 483 745 or visit our Facebook page, Swanley Branch.

As a branch we try to put on all sorts of events to please people of all ages. We also try to get as many people involved in organised sponsored events and help assist all other local branches with whatever they have got on. Our biggest aim is to raise as much awareness of cystic fibrosis as possible to hopefully get cf as well known as the common cold.

Essex
Contact: Joe & Mary 
Email: marychesney@hotmail.com

This group doesn't meet formally but is made up of a number of local families organising and supporting a variety of events throughout the county. The events include musical concerts, garden parties, pub events, discos race nights and lots more.


Research

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

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What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

Read on

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.

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