Involvement Coordinator

Flexible location: Central London or Home based

Salary: £31,000 per year with some out of hours working (inc. London weighting)

Home based: £28,330 with Home Allowance of £300

Full time 35 hours per week plus excellent benefits and flexible working

18 months fixed-term contract with possibility of renewal

Involvement is a valuable activity providing the opportunity and platform for experts by experience (people with lived experience) to share their perspectives and opinions.  The Involvement workstream at the Trust underpins the overall strategy that people living with CF and their families are central to the Trust’s mission, that their lived experience and insights inform and influence the work of Trust (project proposals, literature, messaging, campaigning).  Beyond the work of the Trust, the Involvement workstream acts as a conduit between external organisations and the CF community.  There is a specific element of involvement required for clinical trials and research, which is also reflected in this role.

Each division within the Trust has a responsibility to involve CF community members in the proposal, development and delivery of their work.  It will be the responsibility of the Involvement Coordinator to support and promote the Involvement workstream, supporting colleagues to identif involvement opportunities, to plan and facilitate involvement activity, provide the conduit between external organisations and the CF community and capture feedback and impact to demonstrate how involvement is embedded across the organisation.  To reflect the importance and prevalence of dedicated involvement in research and clinical trials, 40% of the funding for this role is provided by the Trust’s flagship programme, the Clinical Trials Accelerator Platform to support this key element of the programme.

*Occasional National travelling will be required upon Coronavirus restrictions

Benefits include 30 days annual leave, flexible working and opportunities for learning and development.

The Cystic Fibrosis Trust welcomes applications from candidates from all backgrounds and particularly from people with cystic fibrosis, disabled people, and Black, Asian and minority ethnic (BAME) and LGBTQI candidates.

Apply today

If this is for you, we would love to hear from you. Take a look at the full role description and then complete the application form and equal opportunities form, and send your CV to [email protected]. 

Closing date: 10 October  

Interviews expected:  Week commencing 01 November

Please note: we are not accepting applications from agencies.

If you decide to apply for this role, you will need to have the right to work in the UK before starting work for us and we will need to check this.

Your privacy

We welcome your interest in working with us here at the Cystic Fibrosis Trust. In order to review and manage your application, we need to collect certain personal information about you through your application. We are committed to protecting your personal information and being transparent in what we do with it. We will only use your personal information as required to manage your application to work with us, or as required by applicable law or regulatory requirements.  

We do ask that you help us monitor our performance on equality by completing the accompanying Equal Opportunities Form which contains no identifiable personal information. Doing so is optional, and any information you provide through this form will be separated from your application prior to the selection process and used to provide anonymous aggregated reports.

In the event your application is unsuccessful, we will retain your information for up to six months, before it is disposed of confidentially.