New diagnosis

Congratulations on your new arrival!

We understand that a diagnosis of cystic fibrosis (CF) can be very difficult, and there's a lot for you and your family to think about. We are here to help.

In this short film, a mother of a baby who has just been diagnosed with cystic fibrosis gets some reassurance from other parents who have first hand experience. 

If you would like to talk to someone, call our helpline on 0300 373 1000 or send an email and talk to our trained staff, whatever your question or concern.

New parent pack

We have worked with a number of parents of children with CF to produce an information pack for you. This contains a booklet about CF and how some families have found it affected their lives. Through sharing their stories with you, both in the booklet and the film, we hope it may help you cope with the diagnosis and look ahead to your new family life.

Order today

To order your pack, just fill in the order form below!

Alternatively, you can order your pack by calling the helpline on 0300 373 1000 or emailing helpline@cysticfibrosis.org.uk and including your name, address and your baby’s date of birth.

Download the pack

You can also download the new parent pack, and our special pack for friends and family:

Our resources are free to download and order, but we would be very grateful if you would consider making a donation to help us continue our important work.

Further information 

  • Read Sarah's diary, which she kept in the weeks after her son Rhys was diagnosed with cystic fibrosis.

If you want to speak to other people who are experiencing a diagnosis of cystic fibrosis, and share tips, support and advice, check out our Forum. You will need to sign up to access the Forum.

CF Connect

You may find it helpful to speak with other parents who have been through a similar experience. CF Connect can put you in touch with a trained parent volunteer who you can talk to in confidence. Ask our helpline for details.

Find out more

The parents' pack, guide for friends and family, and diary of a parent are excellent. I feel they would be a tremendous support for parents of babies newly diagnosed with cystic fibrosis, as they give a very honest and positive view of what is in store.

Reviewer at the British Medical Association Patient Information Awards

New parent pack form

Name
Address
Email
Telephone
Relationship to child
Child's details

In completing this form, you consent that the Cystic Fibrosis Trust will store and process the information provided above in accordance with our privacy policy unless you have told us otherwise. Read our privacy policy.

We’d love to keep you updated about our work and how you can help, including petitions or fundraising activities. In order to send you emails about our work or to contact you by text message, we need your permission. Please let us know how you’d like to be contacted and say yes to getting involved in the fight for a life unlimited by cystic fibrosis. You can also call 020 3795 2177 or email supportercare@cysticfibrosis.org.uk

We will not share your details with anyone else, unless otherwise stated and in accordance with our privacy policy.

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