Making plans for the end of life can be very difficult, but it’s a good idea for everyone to start thinking about it early on, whether they have health problems or not.
Writing a will is a great start, particularly if you have children, and ensures that your wishes will be noted, lightening the load on loved ones. But there may be other things that are important to you that you can discuss in advance of your death; for example your thoughts on end-of-life care, organ donation, making memories for your family or funeral arrangements.
A guide to end of life planning for people with cystic fibrosis
Our new guide provides some practical information to help anyone, including those without CF, who wants to ensure their wishes at the end of their life and following their death are noted.
Download the PDF
For emotional and psychological support around any of the issues raised on this page, please speak to your CF team or contact our helpline on 0300 373 1000 or by email