UK CF Conference 2014

The UK Cystic Fibrosis Conference 2014 was the UK's largest conference dedicated to a multidisciplinary CF agenda around all aspects of clinical care and cystic fibrosis research.\

Agenda - 4 September 2014

10.00am Registration, refreshments and networking

11.00am Welcome and introduction: Realising improved health outcomes from successfully integrating clinical research and clinical care
Ed Owen, Chief Executive, Cystic Fibrosis Trust

11.10am Morning keynote: Transformational treatments – Correctors and potentiators in the pipeline
Dr Preston Campbell III, Executive Vice President, Cystic Fibrosis Foundation

Why does genotype matter?

11.40am Structure of CFTR and the influence of mutations 
Professor Robert C Ford, Chair in Structural Biology, The University of Manchester

11.55am What is a gating mutation? 
Dr David Sheppard, School of Physiology and Pharmacology, University of Bristol

12.10pm R117H and drugs targeting this gating mutation
Professor Stuart Elborn CBE, Adult Physician, Belfast City Hospital & Professor of Respiratory Medicine, Queen's University, Belfast

12.25pm Panel discussion on novel therapies

12.45pm Lunch and opportunity to meet the sponsors
Sir John Batten Summer Studentships'
Poster Session

Workshop sessions

2.00pm Workshops

  1. Smartcare CF: establishing a new, personalised model of care
    (Bernini Suite)
    Dr Andres Floto, Cambridge Institute of Medical Research, University of Cambridge
    Dr Caroline Elston, Consultant - Respiratory Medicine and Adult Medicine and Adult Cystic Fibrosis, King's College Hospital
  2. Clinical trial testing of novel drugs targeting specific CFTR mutations
    (Michelangelo 2)
    Dr Daniel Peckham, Consultant, Leeds General Infirmary
  3. Effectively utilising data from the UK CF registry at your Centre
    Elaine Gunn, UK CF Registry Clinical Data Manager, Cystic Fibrosis Trust
  4. Cystic Fibrosis Clinical Reference Group (for CF Centre Directors only)
    Professor Diana Bilton, Consultant Physician, Royal Brompton Hospital
  5. Strategies to support long term adherence: habit, will power and attention
    (Michelangelo 1)
    Dr Martin Wildman, Honorary Senior Clinical Health Services Research, ScHARR, University of Sheffield and Consultant, Respiratory Medicine and Adult CF, Sheffield Adult CF Centre, Northern General Hospital
  6. Improving the quality of nutrition care delivered to CF patients
    (El Greco)
    Sarah Collins is a registered dietician working with adults who have CF
  7. What does beating CF mean to you?
    (Medici Ballroom - main conference room)
    Ed Owen, Chief Executive, Cystic Fibrosis Trust
    Professor Jane Davies, Honorary Consultant in Paediatric Respiratory Medicine, Royal Brompton Hospital
    Dr Janet Allen, Director of Research, Cystic Fibrosis Trust

Working together to improve patient-centred care

3.00pm Afternoon keynote: Working together to improve care
Tim Kelsey, National Director for Patients and Information, NHS England

3.30pm Putting the patient voice at the heart of cystic fibrosis care 
Oli Rayner, adult with cystic fibrosis

3.45pm Working together more effectively: implications of the Rudge Report
Ed Owen, Chief Executive, Cystic Fibrosis Trust

4.00pm Update on Cystic Fibrosis Clinical Reference Group
Professor Diana Bilton, Consultant Physician, Royal Brompton Hospital

4.15pm 'Hot off the press'
A series of short presentations on the latest research and updates from the sector 

5.15pm Conference closing remarks

5.20pm Drinks reception

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What is CF?

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are over 10,600 people living with it in the UK.

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