This group is made up of individuals whose lives are affected by cystic fibrosis (CF) and who want to support and inform the work of the Trust and other projects that benefit people affected by cystic fibrosis. Members of the group will be contacted as opportunities arise to be involved in Trust projects that aim to have a positive impact on the lives of people affected by cystic fibrosis.
Your feedback, stories, and ideas will help ensure we are acting on the issues that matter most to people living with or affected by cystic fibrosis.
You are not obliged to fill out any/all of the information below, The information will only be used to identify potential relevant involvement opportunities for you, and to help us ensure we are being inclusive in our involvement by involving many different people.
We’d also love to be able to keep you updated about our wider work, including campaigning, petitions or fundraising activities. In order to be able to send you emails about our wider work beyond the involvement group, or to contact you by text message, we need additional permission from you. Please let us know how you’d like to be contacted and say yes to getting involved in the fight for a life unlimited by cystic fibrosis. You can also call 020 3795 2177 or email email@example.com