Experiences of Living with Cystic Fibrosis; The impact on children, young people, adults and their families
Details
- Therapeutic approach
- Behavioural
- Trial status
- Closed with results Participating Centres
- Trials Tracker ID
- TT001776
- Last updated
- 22/02/2019
Full title
A study to understand needs, challenges and aspirations of people with cystic fibrosis and their siblings in the UK
Study details
A study to understand needs, challenges and aspirations of people with cystic fibrosis and their siblings in the UK
Study detailsThrough interviewing both the patient with CF and their families, this study hopes to establish a clearer picture of the effect the condition can have on the individual themselves and on their immediate family, in various aspects of their lives. From this, we hope to understand the key challenges facing these populations to help tailor the development of services.
- Phase
- Not applicable
- Length of participation
- 1 day
- Recruitment target
- 100
- CF sponsor
- UCL Great Ormond Street Institute of Child Health
- CF sponsor type
- Academic
Who can take part?
- Age range
- 11 years and older
- Including people
11yrs + with CF
11-25yrs Sibling of someone with CF
Parent/Carer of someone with CF- Excluding people
Insufficient English to complete Quality of Life interview
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