A trial investigating the long-term safety and effectiveness of a combined therapy in people with CF

Details

CTAP badge
Therapeutic approach
Restore CFTR Function
Trial status
Recruitment complete Participating Centres
Trials Tracker ID
TT014176
Last updated
16/04/2024

Full title

A Phase 3, open-label study investigating the long-term safety and effectiveness of VX-121 combination therapy in people with CF (Vertex VX20-121-104)

Study details

The aim of this study is to measure the long-term safety, tolerability, and effectiveness of a combination of medicines (VX-121/TEZ/D-IVA) in people with CF.

The treatment is made up of three medications: VX-121, tezacaftor and deutivacaftor. Deutivacaftor is a slightly modified version of ivacaftor that is potentially more stable in the body. This means deutivacaftor can be taken once a day instead of twice a day.

Patients will receive a single, daily dose of VX-121/TEZ/D-IVA in tablet form. Participants will be asked to visit the CF clinic around 12 times over a period of 96 weeks, with an additional follow-up visit approximately 4 weeks after finishing the study medications. During these visits, the research team will look at how the study medications are affecting overall health and lung function. Bloods and other samples (urine, sputum) will be collected at some of the visits. Some assessments will be conducted over the telephone.
 


Phase
Phase 3
Length of participation
100 weeks
Recruitment target
73
CF sponsor
Vertex
CF sponsor type
Commercial

Who can take part?

Age range
12 years and older
Including people
  • Patients must have participated in parent study VX20-121-102 or VX20-121-103 
  • Patients are homozygous or heterozygous for the F508del mutation, or who have at least 1 other triple combination responsive CFTR mutation and no F508del mutation (TCR/non-F)
Excluding people
  • History of drug intolerance in a parent study
  • Women who are pregnant or breastfeeding 
Get in touch

CF centres running this trial

Closed

Birmingham Heartlands Hospital (Adults)

CTAP centre
NHS Trust
University Hospitals Birmingham NHS Foundation Trust
Address
Bordesley Green
B9 5SS
Recruitment starts
Recruitment ends
Trial Coordinators
Gurcharan (Robbie) Singh
Closed

Bristol Royal Infirmary (Adults)

CTAP centre
NHS Trust
University Hospitals Bristol NHS Foundation Trust
Address
Marlborough Street
BS2 8HW
Recruitment starts
Recruitment ends
Trial Coordinators
Sally Coplowe
Closed

Cambridge Royal Papworth Hospital (Adults)

CTAP centre
NHS Trust
Royal Papworth Hospital NHS Foundation Trust
Address
Papworth Road
CB2 0AY
Recruitment starts
Recruitment ends
Trial Coordinators
Victoria Christenssen
Closed

Cardiff - University Hospital Llandough (Adults)

CTAP centre
NHS Trust
Cardiff and Vale University Health Board
Address
Penland Road
Llandough
CF64 2XX
Recruitment starts
Recruitment ends
Trial Coordinators
Catherine Joyce
Closed

Edinburgh - Western General Hospital (Adults)

CTAP centre
NHS Trust
NHS Lothian
Address
Crewe Road South
EH4 2XU
Recruitment starts
Recruitment ends
Trial Coordinators
Debbie Miller
Lynsay Houlihan
Closed

King's College Hospital (London)

CTAP centre
NHS Trust
King's College Hospital NHS Foundation Trust
Address
King's College Hospital
Denmark Hill
SE5 9RS
Recruitment starts
Recruitment ends
Trial Coordinators
Mélanie Le Sayec
Closed

Leeds

CTAP centre
NHS Trust
The Leeds Teaching Hospitals NHS Trust
Address
St James's University Hospital
Beckett Street
LS9 7TF
Recruitment starts
Recruitment ends
Trial Coordinators
Helen Chadwick
Closed

Liverpool Heart and Chest Hospital

NHS Trust
Liverpool Heart and Chest Hospital NHS Foundation Trust
Address
Thomas Drive
Liverpool
L14 3PE
Recruitment starts
Recruitment ends
Closed

Manchester (Adults) - Wythenshawe Hospital

CTAP centre
NHS Trust
Manchester University NHS Foundation Trust
Address
Wythenshawe Hospital
South Moor Road
M23 9LT
Recruitment starts
Recruitment ends
Closed

Newcastle - Royal Victoria Infirmary (Adults)

CTAP affiliate centre
NHS Trust
The Newcastle-upon-Tyne Hospitals NHS Foundation Trust
Address
Queen Victoria Road
NE1 4LP
Recruitment starts
Recruitment ends
Closed

Royal Brompton Hospital (London) - Adults

CTAP centre
NHS Trust
Guy's and St Thomas' NHS Foundation Trust
Address
Royal Brompton Hospital
Sydney Street
SW3 6NP
Recruitment starts
Recruitment ends
Trial Coordinators
Mary Abkir
Closed

Royal Devon & Exeter Hospital (Adults)

CTAP centre
NHS Trust
The Royal Devon & Exeter NHS Foundation Trust
Address
Barrack Road
Barrack Road
EX2 5DW
Recruitment starts
Recruitment ends
Trial Coordinators
Sophie Whiteley
Closed

Royal Manchester Children's Hospital (Paediatrics)

CTAP centre
NHS Trust
Manchester University NHS Foundation Trust
Address
Oxford Road
M13 9WL
Recruitment starts
Recruitment ends
Closed

Southampton General Hospital

CTAP centre
NHS Trust
University Hospital Southampton NHS Foundation Trust
Address
Tremona Road
SO16 6YD
Recruitment starts
Recruitment ends
Trial Coordinators
Zoe Swash
Closed

St Bartholomew's Hospital (London) - Adults

CTAP centre
NHS Trust
Barts Health NHS Trust
Address
West Smithfield
EC1A 7BE
Recruitment starts
Recruitment ends
Closed

St James's University Hospital - Leeds (Adults)

CTAP centre
NHS Trust
The Leeds Teaching Hospitals NHS Trust
Address
St James's University Hospital
Beckett Street
LS9 7TF
Recruitment starts
Recruitment ends
Trial Coordinators
Helen Chadwick