A study to investigate the safety of Kaftrio® in children with CF ages 12 months and older

Details

CTAP badge
Therapeutic approach
Restore CFTR Function
Trial status
Recruitment complete Participating Centres
Trials Tracker ID
TT014545
Last updated
21/03/2025

Full title

A phase 3, open-label study evaluating the long-term safety and efficacy of Elexacaftor/Tezacaftor/Ivacaftor in children with cystic fibrosis 12 months of age and older (VX22-445-123)

Study details

This study is a continuation of parent study (VX22-445-122) looking at the long term safety, tolerability, efficacy, and pharmacodynamics of Kaftrio in children with cystic fibrosis ages 12 months and older.

This treatment is already approved for use in the UK for certain groups of people with CF, but has not yet been approved for children less than 24 months. 

Participants from the parent study who chose to take part in this extension will take Kaftrio in the morning and ivacaftor (IVA) in the evening.

Note: Recruitment to this study is by invitation only. 


Phase
Phase 3
Length of participation
Up to 100 weeks: 96 weeks of treatment and 4 weeks of follow-up
Recruitment target
12
CF sponsor
Vertex
CF sponsor type
Commercial

Who can take part?

Age range
12 months and older
Including people
  • Participants must have participated in the parent study: VX22-445-122
  • Completed study drug treatment in parent study OR had study drug interruptions during the parent study (but did not permanently stop treatment) AND completed all parent study follow-up
Excluding people
  • History of drug intolerance in the parent study that would pose an additional risk to the participant
  • Current participation in an investigational drug trial other than parent study
Get in touch

CF centres running this trial

Recruiting

Cardiff - Noah's Ark Children's Hospital for Wales

CTAP centre
NHS Trust
Cardiff and Vale University Health Board
Address
Children and Young Adults Research Unit
Heath Park
CF14 4XW
Trial Coordinators
Catherine Joyce
Recruiting

Great Ormond Street Hospital for Children (London)

CTAP centre
NHS Trust
Great Ormond Street Hospital for Children NHS Foundation Trust
Address
Great Ormond Street
WC1N 3JH
Trial Coordinators
Lucy Holt
Recruiting

Leeds Children's Hospital

CTAP centre
NHS Trust
The Leeds Teaching Hospitals NHS Trust
Address
Clarendon Wing
Belmont Grove
LS2 9NS
Trial Coordinators
Neil Hall
Recruiting

Liverpool - Alder Hey Children's Hospital

CTAP centre
NHS Trust
Alder Hey Children's NHS Foundation Trust
Address
Eaton Road
West Derby
L12 2AP
Trial Coordinators
Victoria King
Recruiting

Royal Brompton Hospital (London) - Paediatrics

CTAP centre
NHS Trust
Guy's and St Thomas' NHS Foundation Trust
Address
Royal Brompton Hospital
Sydney Street
SW3 6NP
Trial Coordinators
Mary Abkir
Recruiting

Southampton General Hospital (Paediatrics)

CTAP centre
NHS Trust
University Hospital Southampton NHS Foundation Trust
Address
Tremona Road
SO16 6YD
Trial Coordinators
Zoe Swash