Carols by Candlelight

We are very proud and excited to invite you to the twenty-third Carols by Candlelight in memory of my sister Alice Martineau, who died from cystic fibrosis (CF) in 2003. 

You may already be aware of the advances being made in the treatment of CF, particularly in the form of Kaftrio. We have also had cause for celebration this year, as NICE have formally agreed to the provision of Kaftrio to all those eligible in all the devolved nations. 

It may sound sometimes as though the battle has been won, but sadly it has not. Not everyone responds well to Kaftrio; lung damage itself can be halted, but not reversed; and even if the lungs do not deteriorate, other organs such as the kidneys and liver still get worse over time. Finally, although the increased longevity and quality of life for some of those with CF is to be hugely welcomed, with longer lives come other difficulties to overcome: for instance CF diabetes, GI symptoms, cancer, and poor mental health.

Alice suffered a great deal in her short life, but she also achieved so much, signing her record deal with Sony and releasing her debut album Daydreams to critical acclaim in 2002. We have always hoped that what Alice went through will help make a better future for the thousands of people living with cystic fibrosis, and for their families who support and care for them.  

Thank you all for your amazing support.