Despite his positivity, Macauley is aware of the risks. Currently, half of those who die because of cystic fibrosis are just 28 years old - or younger. Cystic fibrosis can mean spending a fortnight in hospital several times a year. The risk of catching bugs from each other means that people with cystic fibrosis can never meet each other in person, even during those long hospital stays.
"I know some people might find these images hard to look at. However, I believe we need to show the harsh reality of this cruel condition. People with cystic fibrosis lose 2% of their lung function every year - if they're lucky - and it can feel like drowning from the inside. That's a scary prospect for me, but over time I believe we can change that. It's vital that we raise awareness and funds to stop so many people dying so young."
How you can be part of the story
Our story is Macauley's story, and the stories of the 10,000 others living in the UK with this terrible condition. It's a story of hope, but to keep giving people hope we need to keep funding cutting-edge research into new treatments and providing trusted information and support to the people that rely on us. We need to shout louder than ever before for fair treatment and access to medicine. And to do all that - we need to raise funds.
By helping, you're not just supporting people with cystic fibrosis and their families, but academics, researchers, clinicians and the whole CF community.
Explore our fundraising events