“I want Ezzah to achieve anything she wants to in life”

Ezzah is 2-years-old and full of energy! She’s always bouncing, running, falling, playing and never stops moving. She has got a very big personality! She loves to sing her nursery rhymes, going out and playing. She likes dogs. And mostly she loves to help me in the kitchen.

When my little bundle of joy was born, she was so beautiful and healthy. We were very happy and blessed. Through a heel prick test it was identified that Ezzah had cystic fibrosis. Receiving a diagnosis was a massive shock, as we didn’t know a lot about the condition. One thing I do remember is the doctors telling us that there was a lot of misinformation about CF out there, so to go straight to Cystic Fibrosis Trust’s website for valid information. 

The first six months were a bit of rollercoaster but slowly CF just became our daily routine. Honestly, doing physio to such a little infant felt really traumatic to me but eventually we got used to it. 

The Trust has helped so much in every aspect of CF. I felt so helpless and overwhelmed, and the Trust’s information has helped me navigate the diagnosis. I read stories from other families on the Trust’s website and I can relate to their feelings and it gives me some peace of mind. I've attended the online Tea and Coffee events for parents and talking to different families has also helped to make things easier. 

Earlier this year, I took part in FeBrewary and held a coffee morning at my workplace. I arranged a small breakfast for my colleagues and put up lots of posters around the canteen to spread awareness about CF. There were very few people who knew about my daughter’s condition, but with this event everyone came to know that Ezzah has CF. Everyone was so warm and concerned about my daughter, and they showed me support emotionally. 

Cystic Fibrosis Trust is doing all it can to ensure everyone with CF can live a life without limits. I fundraise for the Trust because I know it will help fund research into new medicines that can benefit everyone with CF. 

For Ezzah’s future, I just want her to be healthy and happy. I want her to achieve whatever she wants to in her life. She is the sunshine of our lives and I love her so much.