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Cystic Fibrosis Trust

Making the grade

New ‘Schools’ pack offers real-life examples and useful information to parents of children with cystic fibrosis (CF) who are about to start school.

School pack illustration of tree with school related items

The Cystic Fibrosis Trust has released its new schools pack, with the aim of helping parents of children with CF make informed decisions about their child starting pre-school or primary school.

The pack, containing a booklet for parents, factsheets for teachers and a template for an individual healthcare plan, highlights the experiences of parents who have been through the exciting, yet often daunting, process of getting their child with cystic fibrosis off on the right foot at a new school.

Michelle Rostant-Bell, Information Manager at the Trust, said: “After consulting with parents, the Trust found that starting school is often the first time that someone outside of the family takes responsibility for a child’s CF care, and as such it can be a worrying time. The new pack demonstrates that there is no ‘right’ way to do it, and that different families will have different priorities and approaches to different issues.

“We are committed to providing expert information to help everyone with cystic fibrosis, and their families, make the right decisions about their health and their care, and the schools pack is a great example of this in action.”

The new resources have been developed in partnership with parents, teachers and CF professionals and with the financial support of Simplyhealth - find out more about it or watch a video produced alongside the pack, highlighting the experience of one family during this time.