Our April Media Round-up
Record number of runners with cystic fibrosis sign up to run the TCS London Marathon
Just last weekend, we had a record number of people with cystic fibrosis run the London Marathon, more than ever before. We had sixteen people with cystic fibrosis sign up to run the London Marathon, a 40% increase than the year before. This is no doubt due to the advances in the treatment and care of cystic fibrosis, and the effects of Kaftrio for those able to take it.
A huge thank you to everyone who ran the Marathon for Cystic Fibrosis Trust. You can sign up for next year’s Marathon here.
1,200 researchers at the start of their careers and funded by medical research charities due to receive over £50m in funding
Science Minister George Freeman has announced that over 1,200 researchers at the start of their careers and funded by medical research charities will receive over £50m funding. This is in response to response to the significant impact of the pandemic. The funding will allow charities to continue to play their role in saving and improving lives in the UK. 80 charities stand to benefit from the funding grant, including Cystic Fibrosis Trust.
You can read more here.
Contestant with cystic 
fibrosis gets to the final of BBC’s Interior Design Masters
BBC’s Interior Design Masters saw a contestant, Jack Kinsey, open up about his cystic fibrosis. Jack excelled in the programme, reaching the final of the competition and was especially praised for his design of a beach hut which he dedicated to NHS workers, and his design of a preschool nursery room. You can watch Jack on Interior Design Masters on BBC iPlayer.
Watch Jack in series 4 on BBC iPlayer here.
Kaftrio made available to children in Australia and Orkambi available to children in Canada
Vertex have announced that Kaftrio will be made available for children aged 6-11 in Australia and Orkambi will be made available for children aged one to under 2 years old in Canada. Thousands of children stand to benefit from this drug and limit the damage cystic fibrosis can do at a young age.
Kaftrio has been available for children aged 6-11 in the UK since Jan 2022.
You can read more here and here.
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