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Cystic Fibrosis Trust

One SCooP or two?

Successful pilot study brings hope for families struggling with infant physio.

The nightmare of managing physiotherapy for small children with cystic fibrosis could soon be over after researchers at the University of Stirling, part funded by the Cystic Fibrosis Trust, announced a successful first phase of their project to develop a multimedia resource for parents.

The team, led by Dr Emma France from the School of Health Sciences, devised an ‘intervention’ called SCooP, a video and family action plan that evidence suggests could help parents and children aged eight and under stick to their physio regime.

The cystic fibrosis community played an important role throughout the first phase, beginning with a public vote to name the project, followed by a group of paediatric CF clinicians and parents of young children with CF working with the team to develop the video and action plan, and then a number of families testing the materials.

The project will now progress to a second phase, SCooP 2, where the team will carry out more testing and refine the materials in a further feasibility study, which they hope will lead to a larger trial to definitively prove that the video and plan can improve physio adherence.

Dr France, said: “It has been a stimulating and humbling experience to work with families and the Cystic Fibrosis Trust on the SCooP project. I can’t thank those who got involved enough. The SCooP team is delighted that the resource looks so promising. We are looking forward to the next stage of its development and testing and hope that in the near future the resource will be available for any family to use”.

Paul Rymer, Head of Principal Involvement at the Cystic Fibrosis Trust, said: “This is a fantastic project that forms part of a range of initiatives the Trust is supporting to ensure that physiotherapy and other physical activities that improve CF health are more fun and engaging, and inspire children and young adults to develop habits that will stand them in good stead as they grow older.”