The Cystic Fibrosis Trust has issued a statement opposing NHS plans to abolish the cystic fibrosis (CF) Clinical Reference Group (CRG), which advises on CF-related clinical activity within the NHS in England.
The plans, which NHS bosses have been consulting on, propose incorporating CF into the more general Specialised Respiratory CRG.
The Cystic Fibrosis Trust has issued a comprehensive response to the NHS, explaining that this move will undermine the needs and interests of people with cystic fibrosis by marginalising their voices and those of the professional clinical teams responsible for their care.
Dr Keith Brownlee, the Trust's Director of Impact, said: "This proposal would reduce the voice of people affected by CF and their clinical teams and we have made clear our serious concerns."
The Trust’s is campaigning hard against these changes – read its response to the NHS
, voicing a strong opposition to the proposal.