NICE are currently evaluating the cost-effectiveness of Kaftrio, Orkambi and Symkevi. With the committee due to meet again on 14 December following public consultation, we discuss the next steps
Apps on our phones are a big part of day-to-day life, so using them for research and health monitoring in CF seems like a logical step. Here, we talk to researchers about how they’re working with people with CF to use apps to help them learn more about CF and improve their health.
For this month’s ‘Inside the lab’ researcher profile article, we caught up with PhD student Hollie Leighton. Based at the University of Liverpool, Hollie’s research is co-funded by Cystic Fibrosis Trust and the CF Foundation in the United States of America as part of our ‘PIPE-CF’ Strategic Research Centre.
CF teams are contacting their patients following information issued by the UK Health Security Agency (UKHSA), who are investigating a small number of cases of the bacterial infection Burkholderia cenocepacia in the UK.
People with cystic fibrosis are extremely vulnerable to lung infections, which can be hard to treat, hard to detect, and resistant to antimicrobial medicines.
Trigger warning: This blog includes detailed descriptions of medical procedures.
Over recent years, there has been a global increase in the number of infections in people with cystic fibrosis caused by nontuberculous mycobacteria (NTM). This World Antimicrobial Resistance Awareness Week, we spoke with Sara about her experience with CF and NTM.
