Here are just a few projects that have been successfully developed with the influence of your lived expertise and support the future of CF for the current and next generations.
Today (11 February) is International Day of Women and Girls in Science. It’s a chance to highlight and celebrate the role of women and girls in cystic fibrosis (CF) research and inspire others to follow in their footsteps. We spoke to Bethinn, who has CF and works in CF research. “It’s a real privilege to be in this position,” Bethinn told us.
Cystic Fibrosis Trust is the only UK-wide charity dedicated to uniting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition.
CF affects different parts of the body, and while some of these effects are already known about, we are starting to find out more about others as people with CF live longer. We want to prevent CF complications from developing and improve how they are treated and managed.
Our Advance CFTR Development Award is setting up a new test to improve CF diagnosis in people with rare forms of CF. Last month, we went to a progress meeting to find out more.
Trust-funded researchers have measured markers in the blood to understand more about how CF diabetes develops. Their results were published last month.