Anna is Corporate Partnerships Manager here at the Trust. In April, she will be lacing up her running shoes to take on the London Marathon and raise vital funds and awareness for everyone affected by cystic fibrosis (CF). With the countdown to race day well and truly on, Anna shares some top tips for getting colleagues involved in your fundraising.
Cystic Fibrosis Trust today delivered over 1000 signed prescriptions to No.10 Downing Street, calling on the Prime Minister to urgently review the outdated prescription charges exemption list drawn up in the late 1960s when most people with cystic fibrosis did not live beyond childhood.
A new review has been published in the scientific journal Nature Communications looking at the future of cystic fibrosis (CF) therapies and highlighting some of the priorities for future research and development. In this blog, we look at a selection of the key issues covered and how the Trust is supporting them to achieve our goal of a life unlimited for everyone with CF.
Cystic Fibrosis Trust is launching an exciting new employment project ('Work Forwards'), supported by the National Lottery to provide free, tailored careers information and advice to people affected by cystic fibrosis and those who care for them.
This Rare Disease Day, we’re shining a light on how our Policy and Public Affairs team are working to create a future where everyone with CF can live a life unlimited
As we launch Work Forwards, our new programme of employment support for people with CF and their loved ones, we'll be sharing stories from across the community about work and CF. Paul Baverstock, 39, is an actor, best known for roles in films like Hard and Soft and Close but no Cigar, and the cult video game, Not for Broadcast. Paul took time out from filming to share a typical day balancing the demands of CF and life on set, his advice to budding actors, and what motivates him in his career.
