This year marks the 10th anniversary of cystic fibrosis (CF) becoming part of the Guthrie heelprick test for newborn babies across the UK, as the last few health authorities across the country adopted the process. But the story of how we got there began in earnest way back with CF Week 1996 and the launch of the Cystic Fibrosis Trust’s newborn screening campaign, which would see the CF community raise its voice and change the way CF is understood and cared for, forever.
The North American Cystic Fibrosis Conference (NACFC) is the world’s biggest research conference on cystic fibrosis (CF) research. Researchers gather to present and debate the latest scientific advances and gain inspiration on how they can continue to improve CF care. It is also an opportunity to air big questions, both those from within the CF community and across society. Here we share some of the highlights from this year’s conference, held online in October.
With your support this Wear Yellow Day (16 June), we can continue to fund research into life-changing treatments that work for everyone with cystic fibrosis (CF). Together, we can ensure people with CF, like new mum Charlotte, can look forward to a brighter future. Charlotte shares her story.
This CF Week, we chatted to Adam, 19, about daily life with CF, what he wishes more people understood about the condition, and how support from Cystic Fibrosis Trust has helped him.
From the information you read on our website, to the publications you may be given by your CF team, the information and support team here at the Trust produces a wide range of free and balanced information resources on all aspects of life with cystic fibrosis. As well as helping the CF community to make informed decisions, we also produce consensus documents for health professionals working in CF care. Ahead of the publication of new consensus documents on CF diabetes (CFD), CF laboratory standards and pharmacy standards, Holly from our information team shares more about how these documents are produced and why they are so important.
10,000 Black Interns programme participant Etienne discusses his time spent working at Cystic Fibrosis Trust - and why programmes to support Black representation are so important
