Rachel, mum to one-year-old Lottie who has cystic fibrosis (CF), shares their story of navigating the new diagnosis and dreaming of a future of life without limits.
The 2024 UK general election has brought significant changes to our political landscape, and at Cystic Fibrosis Trust we want to seize every opportunity to advocate for improved CF care and support. Our advocacy work puts the needs of people with CF, their families, and professionals working in CF care at the heart of everything we do.
As we mark two years since the start of the pandemic, Dr Rachel Massey-Chase, co-chair of the UK Pyschosocial Professionals in CF group, has written another open letter to the CF community. The letter acknowledges the changes the past two years have brought and the mixed feelings you may have as restrictions have eased across the UK. It also provides tips on managing uncertainty and anxiety.
Mya is 17 years old, lives in Wales and has cystic fibrosis. Find out how she used the Cystic Fibrosis Trust’s health and wellbeing grants to achieve a healthier lifestyle and manage the day-to-day struggles with her condition.
Care is changing rapidly in CF. In this blog, Jana Witt, Clinical Quality Improvement Manager at Cystic Fibrosis Trust, reflects on insights from our first ever CF workforce survey of more than 150 CF professionals.
In recognition of International Women’s Day, we are celebrating Dr Mary Goodchild, who dedicated her working life to helping those affected by cystic fibrosis (CF) and supported the Cystic Fibrosis Trust to the end with a gift in her will. To commemorate her memory, and to thank Mary for her work and the generous legacy she left to the Trust, we invited some of her family and close colleagues to share their stories of her and her clinical and research career.
In a YouGov poll carried out last year, we discovered that 86% of the general public do not know that people with CF cannot meet in person due to the risk of passing on potentially deadly infections to each other. In this blog, Sarah, 37, writes about how the risk of cross-infection affects her day-to-day life and the support she’s found from the CF community.
Ahead of the London Marathon this Sunday, we sat down with Colleen, mum to five-year-old Ewan, who has cystic fibrosis (CF), to hear all about him, her fundraising and how she’s feeling about the Marathon.
