Nick is 47 years old, recently married and is a big fan of travelling the world, skiing, scuba diving, climbing mountains… Less adrenaline intense hobbies include watching TV and gaming. He was diagnosed with CF at 13 years old, and through his incredible fundraising has raised over £144k for our charity and spoken at numerous events to help others fundraise.
When Emma’s son Arthur was diagnosed with cystic fibrosis (CF), she didn’t know where to turn. But through the support of friends and family, their CF team and Cystic Fibrosis Trust, they found a way to adapt to their ‘new normal’. We spoke to Emma about her advice for other CF parents, raising awareness and her “brave and fearless” little boy.
In November, you told us that your top CF research priority was “What options are available for those not able to take current CFTR modulators (including rarer mutations, not eligible and unable to tolerate)?”. Today we’re excited to announce a new funding partnership with the US based CF charity Emily’s Entourage to develop novel ways to deliver a genetic therapy for CF in the lab. If successful this research could lead to a treatment for everyone with CF in the future.
To mark Valentine’s Day, we chatted to Amelia and her partner David, who has cystic fibrosis (CF), about their love story and why Amelia was inspired to run this year’s London Marathon for the Trust.
Saturday (11 February) is International Day of Women and Girls in Science. It’s an opportunity to celebrate incredible achievements and promote science as a career for women and girls around the world. We talked to five women to find out about their roles in CF research and their advice to other women and girls considering a career in science.
The Trust is keen to encourage healthcare professionals to consider a career in cystic fibrosis research. As one way to do this, we’re a funding partner with National Institute of Health and Care Research (NIHR) in their Pre-doctoral Clinical and Academic Fellowship (PCAF) scheme. The scheme offers applicants time out of their busy work roles to prepare and apply for doing a PhD research degree. Gemma Stanford is a physiotherapist at the Royal Brompton Hospital in London and in the final stages of her PhD. We spoke to her to get the lowdown on life as a researcher.