Information evenings

In 2020/21 the Trust will once again be hitting the road for a series of Community Information Evenings around the UK. These evenings are an opportunity to get the latest information from the world of cystic fibrosis (CF) and the Cystic Fibrosis Trust from a panel of Trust staff and expert CF clinicians.

The panel will take questions and provide updates on areas such as research, CF care and campaigning for access to medicines, and it’s a great opportunity to meet other parents and carers in your area.

2019 saw us visit Birmingham, Newcastle, Cardiff, Liverpool, Nottingham and Belfast, and this year we’re looking forward to meeting many more of our supporters around the UK – locations to be confirmed soon.

Why come along?

  • Get the latest news on CF and the fight for a Life Unlimited – and hear how you can help
  • Put faces to the names and meet some of the Trust’s dedicated staff
  • See where your support is going
  • Meet other families living with CF in your area

Audience feedback

Don’t believe us – here’s what audiences have said:

“A very useful update and good that it was open for discussion”

“Good to hear of all the research priorities going on as well as day to day care”

“Much easier to attend a local event, thank you for the time given by local consultants too”

Join the conversation

We regret that due to the risk of cross-infection, people with CF are unable to attend these meetings in person, but they will all be available to join live via Facebook.

In addition to meetings ‘on the road’, we will also be hosting some ‘online only’ events. These events will be broadcast live from the Cystic Fibrosis Trust’s office in London, and will cover a wide range of CF-related topics. Panels will include clinicians, people with CF, CF Trust staff and more.

More details, dates and locations will follow shortly. If you would like to join the conversation, have a question, or a topic you’d like raised or a suggestion of where you would like us to visit in the future please let us know by emailing

Research we fund

We fund research to tackle some of the most pressing issues in CF today. Find out how your donations are making a difference.

What is CF?

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are over 10,600 people living with it in the UK.

Contact us

Get in touch with us to speak to someone on our Helpline, find out about an event or speak to our Press Team.

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