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Cystic Fibrosis Trust

Information evenings

In 2019/20 we’re hitting the road for a series Community Information Evenings around the UK. These evenings are an opportunity to get the latest from the world of CF and the Cystic Fibrosis Trust from a panel of Trust staff and local CF clinicians.

The panel will take questions and provide updates on areas such as research, CF care and campaigning for access to medicines, and it’s a great opportunity to meet other parents and carers in your area.

Upcoming evenings

Earlier this year, we hit the road and held a series of community information evenings in Newcastle, Nottingham, Birmingham and Cardiff. We’re planning on visiting other areas of the country later this year for some more events. Check back here in the next month or so for more details.

We regret that due to the risk of cross-infection, people with CF are unable to attend. We are aiming to stream as many of these events as possible via Facebook Live.

Do you have a question or topic you’d like raised, or suggestions for where we should hold future events? Let us know by emailing After registering, you will be able to ask specific questions and nominate topics to be discussed on your chosen evening

Why come along?

  • Get the latest news on CF and the fight for a Life Unlimited – and hear how you can help
  • Put faces to the names and meet some of the Trust’s dedicated staff.
  • See where your support is going
  • Meet other families living with CF in your area

Audience feedback

Don’t believe us – here’s what audiences have said:

“A very useful update and good that it was open for discussion”

“Good to hear of all the research priorities going on as well as day to day care”

“Much easier to attend a local event, thank you for the time given by local consultants too”

Research we're funding

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.