UKCFC 2018: day two

Day two is designed for all those with either a personal or professional interest in cystic fibrosis (CF).

Tuesday 11 September 2018

Day two of the conference will be streamed live online.

9.00 Conference registration
9.30 Welcome to day two

Richard Hunt CBE, Chair of Trustees, Cystic Fibrosis Trust

Session one

9.40 Our three-year strategy

Chair: David Ramsden, Chief Executive of the Cystic Fibrosis Trust

  • Presentation of how the Cystic Fibrosis Trust's three-year strategy is responding to the needs and demands of the CF community.

Session two

10.10 Access to medicines

Chair: Professor Jane Davies, Imperial College London

Pathways to new medicines

  • Explore and explain the current drugs pipeline and the upcoming challenges
10.40 The value of new medicines

Panel discussion covering:

  • the process of appraisal
  • approval and funding of new and precision medicines
  • the impact this has on burden of care and existing treatments
  • the role the Trust and the CF community can play in this
  • the value of new and precision medicines to people with CF and the clinical community
    11.10 Break: refreshments and networking

    Session three

    11.25 The future of care

    Presentation by Dr Keith Brownlee, Director of Policy, Programmes & Support, Cystic Fibrosis Trust, followed by panel discussion.

    Session four

    12.15 Cystic fibrosis and the 'real world'

    Interactive presentation/live podcast by Will Marler covering different experiences of day-to-day life with CF and the range of information and support issues faced by people with cystic fibrosis.

    Closing remarks 
    13.00 Lunch and networking

    Session five

    14.30 Afternoon workshops

    Multidisciplinary interactive sessions to help in the fight against cystic fibrosis

    A. CF and physical therapy/exercise

    B. Youth work in CF

    C. Diet and nutrition

    D. Clinical Trials Co-ordinator Workshop

    E. UK Cystic Fibrosis Medical Association

    Annual General Meeting – Closed Session

    16.00 Close of conference

    Research we fund

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    What is CF?

    Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are over 10,600 people living with it in the UK.

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