Specialist cystic fibrosis care
We have put together a collection of consensus documents covering various aspects of cystic fibrosis care, including: Standards of care, Burkholderia cepacia, Pseudomonas aeruginosa, Nursing, Physiotherapy, Nutrition, Antibiotics and CF-related diabetes.
-
Consensus documents
Our consensus documents were compiled by clinical cystic fibrosis specialists in paediatric and adult care, working in hospitals and academic and scientific institutions throughout the UK.
By referring to the consensus standards clinicians will ensure they provide the optimum level of care for people with cystic fibrosis and their families.
These documents are primarily guidelines for specialist and general clinicians who care for people with cystic fibrosis, but researchers and people with cystic fibrosis and their families may also find them useful. We recommend communicating closely with your nearest specialist CF centre on all aspects of your treatment.
Download the consensus documents here
We would like to thank the working parties who helped create these documents, and we are grateful for the comments and suggestions from parents, patients and professionals who have been involved in their review.
-
Adult CF centres
CF centres are specialised departments within hospitals that provide care for people with CF.
-
Children's CF centres
Children's CF centres are specialised departments within hospitals that provide care for people with CF under the age of 18.
Research we fund
We fund research to tackle some of the most pressing issues in CF today. Find out how your donations are making a difference.
What is CF?
Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are over 10,600 people living with it in the UK.
Contact us
Get in touch with us to speak to someone on our Helpline, find out about an event or speak to our Press Team.