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Leaving school and cystic fibrosis

Find out about how cystic fibrosis (CF) might affect your options after secondary school, download our booklets, order them to your door, or watch our video on what you can do after leaving school or college.

School’s out, so what’s next? Whether you choose to move on to training, sixth-form, college or university, or even take a gap year, our resources are here to help you make the decisions that are right for you! As well as an animation all about leaving school, we have two booklets on life after secondary school for young people with cystic fibrosis and their parents, and a useful factsheet for training providers, colleges and universities.

 

Download our booklets on leaving school

Download our leaving school booklets here as PDFs that you can read on our laptop, tablet or phone.

Order the booklets

You can order free copies of our leaving school booklets to be sent straight to your door by filling in our order form. Alternatively, you can contact our helpline by emailing helpline@cysticfibrosis.org.uk or calling 0300 373 1000.

Order the booklets

What can you find in our leaving school booklets?

Cover of higher education pack, which has a boy reading on it with a speech bubble that says 'School's out... what's next?!'

Our booklet for young people is full of useful information to help you with your next steps, including information about:

  • Choosing your options
  • Disability and knowing your rights
  • Sixth-form college
  • Taking a gap year
  • University or college
  • Choosing not to go to university
  • Talking to new friends about your CF
  • Leaving home and accommodation
  • Funding

Our booklet for parents includes quotes from CF professionals and parents to help you support your child’s next step. As well as covering the areas above, the booklet also has sections on:

  • How to support your child’s decisions
  • Communicating with your child’s education provider
  • Treatment adherence
Cover of the information for training providers, colleges and universities booklet, which has a drawing of a woman with a pointer and a thought bubble coming off her that reads 'information for training providers, colleges and universities'

Our information for training providers, colleges and universities is a useful document to give to the people providing you with your education or training so that they can find out more about cystic fibrosis. There are sections in the booklet on:

  • The symptoms of CF
  • Cross-infection
  • Making reasonable adjustments

There is also an area for you to write about your CF and how it affects you.

More information

Quote that reads: 'I've never said 'you can't do that', I've tried to encourage my daughter to consider what would make her life easier and be enjoyable.'

If you need more information, or want to share tips, support and advice, check out our Forum. You will need to sign up to access the Forum.

Our confidential helpline offers general advice, support and information on any aspect of cystic fibrosis, including help with financial support.

Joseph Levy Education Fund

The Joseph Levy Education Fund helps young adults with CF over the age of 18 with the costs of higher education, vocational training or other professional qualifications. The Fund also accepts applications from people with cystic fibrosis aged 16 or 17 who are not moving into formal further education and who wish instead to undertake vocational training. For more information, visit their website or contact:

Maria Zava
First Floor
1 Bell Street
London
NW1 5BY
Phone: 020 7616 1207   
Email

Applications can be submitted all year round. Those received by 31 May are assessed in June and those received by 30 November are assessed in December. 

If you need more information, or want to share tips, support and advice, check out our Forum. You will need to sign up to access the Forum.

Life with CF

From new parents and best friends of someone with cystic fibrosis, to journalists and those with a professional interest in it – there’s a lot to learn! Take a look at our informative resources.

Find out more

Find support

There's loads of support available for people with cystic fibrosis and their families, from grants to help with benefits.

Discover more

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

Read on