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Cystic Fibrosis Trust

Digital democracy - take part wherever you are

Cutting-edge virtual campaigning workshops help people with cystic fibrosis (CF) and their family and friends become a force for change.

Parliament Outreach, a group that helps break down the barriers between the public and parliament, is working together with the Cystic Fibrosis Trust to bring you a second virtual workshop on digital democracy.

Participants will learn how to add their voice to the Trust’s campaigns, ensuring that the CF community is heard loud and clear by Parliament when it makes decisions that affect their lives.

Lynsey Beswick Public Affairs Officer for England said “The virtual workshop aims to provide the CF community with the tools and information they need to campaign on key issues, such as our Stopping the Clock campaign for fairer access to precision medicines, without the risk of cross-infection.”

Lucinda Blaser, Senior Engagement Officer at Parliament Outreach, helped run the last session and said: “The main message was ‘let’s all work together’. Whether it’s engaging a local MP over email or campaigning to improve levels of nationwide support, we wanted to show that people with cystic fibrosis speaking with a personal but combined voice is the best way to influence change at both a local and national level.”

The workshop takes place on Tuesday 26 July - find out more (PDF) and register your interest in becoming a vital part of campaigning for fair treatment for people with cystic fibrosis by emailing PublicAffairsTeam@cysticfibrosis.org.uk