Double number of babies for women with CF, our new report shows
This is one of several indicators from the report suggesting improved health outcomes for many people with CF in the UK. The proportion of people receiving at least one course of intravenous (IV) antibiotics has dropped, with 24.3% reported in 2021 compared to 39.2% in 2020, while the prevalence of some lung infections has fallen. This could be related to a range of factors, including increased access to Kaftrio, which was rolled out in late-2020.
The scale and scope of the data collected by the UK CF Registry continued to grow, with over 10,000 annual review datasets captured in 2021, testament to the efforts of CF care teams, despite the ongoing disruption from COVID -19.
In a time of profound change, this report brings so many useful insights that will drive our understanding of cystic fibrosis and the support we provide for people affected by the condition. There are positives we can take, with an increase in the number of people with CF having families - double the number of the year before and a much-improved picture for overall health.
David Ramsden, Chief Executive at the Trust
The median predicted survival age for someone born with CF today has increased to 53 years. But this is still far too young – and shows there is still much more work we need to do. We will not stop until everyone with CF can truly live a life unlimited: mentally well, physically well, and personally fulfilled.
Dr Siobhan Carr, Chair of the UK CF Registry Steering Committee, added:
“The 2021 Registry data continues to be a rich resource to help CF teams, researchers and people with CF understand the current health of people with CF in the UK. The impact of the COVID-19 pandemic and the widespread introduction of new treatments for cystic fibrosis appear to be showing through in the data. I would like to thank the people with CF for consenting to have their anonymised clinical data recorded and the clinical teams for entering it into the Registry.”
Read more about the findings of the report in our blog
Cystic fibrosis (CF) is a genetic condition which causes sticky mucus to build up in the lungs and digestive system. It affects more than 10,800 people in the UK. One in 25 of us carries the faulty gene that causes it, usually without knowing.
Since 1964, we've supported people with cystic fibrosis to live longer, healthier lives -and we won’t stop until everyone can live without limits imposed by CF.
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