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"Having CF doesn’t have to stop you from doing the things you’re passionate about": Get to know our Youth Advisory Group
What would be your advice on coping with the transition from paediatrics to adult care?
Rosie: The idea of moving up to adult care can be very daunting and worrying, but you aren’t alone with these feelings; nearly every young person your age with CF will be feeling the same. I am currently preparing to move up to adult care myself and my paediatric team have been very helpful with supporting me. Your team can support you in many ways. For example, they can set up meetings with your future adult team and talk you through the process of transitioning to make it less scary.
What would you say to a young person thinking about joining YAG?
Tilly: YAG is something I will treasure and hold close to my heart for my entire life. The friends that I have made through the group are all very special to me, I’m really close to them and I feel so lucky that YAG led me to them, as we would never have been able to meet otherwise. The projects that we do are so impactful and important for not only the Trust but the wider CF community as well.
If you could step into somebody else’s shoes for the day, who would it be and why?
Tehya: I would choose my dance teacher Holly because she is my biggest inspiration. I love how she can make a team into a family. She is an incredible dancer and dance teacher and I hope one day I can be as good as her. I would love to experience what it’s like to dance like her and run a business like she does.
If you were stranded on a desert island, what three items would you take and why?
Chawan: In terms of survival, I would pack some matches. That way I’ll have a fire to cook food, purify water with and stay warm. Also, I’d take a tent; that way I wouldn’t have a to worry about shelter as I doubt I would be able to make a sufficient one myself! To keep my spirits up I would pack as many books as I’m allowed – the bigger they are the better. That way I would be able to keep myself entertained with interesting stories and feel less alone on the island. This question is a bit of a brain teaser, what would you bring?
What’s one thing you wish more people knew about CF?
Rosie: It doesn’t define us. Having CF doesn’t stop you from doing the things you’re passionate about, no matter what that may be. There are so many ways to do the things you’re passionate about while being mindful of your CF; for example, working with animals and hay can be risky, but I wear a mask and wash my hands frequently to help reduce the risk of infection.
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