Introducing the Cystic Fibrosis Community
Over the past year we’ve worked hard together with people affected by CF to create a new online forum which is a safe space for asking questions, seeking support, or just simply connecting with others in the community.
Our forum is an important space for people affected by CF to come together, share experiences and help one another. Last year we decided to do some work to breathe new life into the forum to make sure it served the community in the best possible way. We invited members of the community to talk to us and tell us what has worked in the past and what they would like to see changed in the future. This helped us to create something that we hope will be a safe, informative, and easy-to-use resource for all.
From diagnosis and wellbeing, to work and transplant, there are a number of spaces where you can connect with others and talk about the issues that matter to you.
We believe with the changes we have made you will be able to find the answer to your questions faster and connect with the community in a more user-friendly way. One key piece of feedback we received was that it must be easily accessible on all devices, and we’re pleased to say the new forum works fantastically on whatever device you’re using. We hope this makes using our forum more inviting and accessible for you all.
Of course, our forum is nothing without the CF community making it a vibrant, helpful and safe space, so if you have a question, you need support or just want to talk to others about CF, please join us today.
Cystic fibrosis (CF) is a genetic condition which causes sticky mucus to build up in the lungs and digestive system. It affects more than 10,800 people in the UK. One in 25 of us carries the faulty gene that causes it, usually without knowing.
Cystic Fibrosis Trust provides lots of great resources on all aspects of life with CF. Along with the medical advice you receive from your CF team, our information can help you make informed decisions about your lifestyle, treatment and care, however you’re affected by cystic fibrosis. All our information is written and reviewed by experienced information and health professionals.
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