Our May Media Round-up
Cystic Fibrosis Awareness Month in US, Canada and Australia
May was Cystic Fibrosis Awareness Month in America, Canada and Australia, which saw Vertex, the manufacturers of Kaftrio, light up their Boston offices in blue and yellow.
The UK CF awareness week is this month, starting June 12th, with this year’s theme being ‘research’, celebrating the incredible progress we’ve already made in CF research, and looking forward to the breakthroughs we can make in the future.
You can read more about UK Cystic Fibrosis Awareness week here.
Funding call for £15m research programme announced
Medical research charity LifeArc and Cystic Fibrosis Trust have announced a funding call for a £15m research programme which will fund a new Innovation Hub Network. The Hub Network will fast-track new research and treatments to improve the lung health of people with CF. The research programme is expected to start in the summer 2024, and the first expression of interest stage is open until 31 July.
You can find out more here.
Siobhán McSweeney wins a BAFTA
One of Cystic Fibrosis Trust's celebrity supporters, Siobhán McSweeney won a BAFTA this month for her performance as Sister Michael in Channel Four's Derry Girls. Siobhan has previously been involved in our FeBrewary and Wear Yellow Day campaigns.
You can see more about our celebrity supporters here.
New cystic fibrosis awareness campaign launches
Billboards of our new awareness campaign featuring fitness coach and nutritionist Kieron, who has CF, have gone up around the UK. The campaign raises awareness of CF as an invisible condition, demonstrating how no one can see what someone with CF goes through to stay well from just looking at them.
You can read more about Kieron and our awareness campaign here.
You can watch our Media Round-up on any of our social media platforms, or by clicking this link: May Media Round-up